Genetic Alliance Webinars offer information and discussion on a variety of topics, including hot-button issues in genetics and advocacy, public policy, and organizational development. Genetic Alliance presents a new webinar at least once a month.
Ancestry and WGS: other privacy concerns?
Privacy and Progress Webinar Series
December 10, 2013 | 12:00 pm - 1:00 pm EST
The Presidential Commission for the Study of Bioethical Issues recently released a report entitled Privacy and Progress in Whole Genome Sequencing. This is the last webinar in the series and to watch all of the previous webinars click here.
Ken Chahine - Senior Vice President and General Manager, DNA, Ancestry.com
Jennifer Wagner - Attorney and Anthropologist, University of Pennsylvania
Public Health Genomics In Practice: State Strategies for Preventing Heritable Cancer and Cardiovascular Syndromes
December 18, 2013 | 12:00 pm - 1:00 pm EST
A webinar presented by the APHA Genomics Forum and Genetic Alliance
Background: It is estimated that 2 million people in the United States are affected by hereditary breast/ovarian cancer (HBOC), Lynch syndrome and familial hypercholesterolemia (FH), yet only a fraction are aware of their risk status. While evidence-based screening recommendations are available for these conditions, individuals and families have generally been served on a case-by-case basis by clinicians. An integrated public health approach can contribute substantially to the identification of individuals at risk for these disorders.
Objective: This webinar will describe the role of public health agencies and their partners in implementing effective programs that address HBOC, Lynch Syndrome and FH at the population level. The experience of five states will be highlighted, including descriptions of their programs and funding strategies.
Audience: Public health and other healthcare professionals involved in genetics or chronic disease prevention are encouraged to participate in this webinar.
1. Introduction by Muin Khoury, MD, Ph.D., Director, Office of Public Health Genomics, CDC (OPHG)
2. Video featuring the Michigan experience, produced by the Genetic Alliance and OPHG
3. Panel highlighting four state programs:
Muin Khoury, MD, Ph.D., Director, Office of Public Health Genomics, CDC (OPHG)
Summer Cox, MPH, Oregon Genetics Program Coordinator
Beverly Burke, MSW, Coordinator, Genomics Office, Connecticut Department of Health
Debra Lochner Doyle, MS, LCGC, Washington State Genetics Coordinator
Jan Lowery, Ph.D., MPH, Ass’t Professor, University of Colorado School of Public Health
4) Questions and Comments Session
James O’Leary, Chief Innovation Officer, Genetic Alliance
We add new webinars throughout the year. Please stay tuned for outstanding new offerings. In the meantime, check out our archives for webinars you may have missed.