Genetic Alliance Webinars Schedule

Upcoming Schedule: Please Save the Date

 

Wednesday, May 14, 2008, 12:00 PM - 1:00 PM EST
National Library of Medicine
Meet Your Neighbors

The May 14 Webinar will introduce you to some of the patient-friendly resources at the National Library of Medicine (NLM). Many of these resources were developed with the help of subject matter experts, including Genetic Alliance members, to help you through your medical odyssey. Speakers May Cheh and Lisa Forman will show you how to access these materials, how to customize them to your own needs and how to ensure that your interests are kept updated and accurate. We look forward to e-meeting you!

Presenters:
Lisa Forman Neall - National Library of Medicine
May Cheh - National Library of Medicine

Wednesday, May 21, 2008, 12:00 PM - 1:00 PM EST
What's new with newborn screening in the States
Hot Topics in Genetics and Advocacy

Presenters:
Fred Lorey - Acting Chief, Genetic Disease Screening Program, CA Dept Public Health
Katharine B. Harris - NYMAC Project Director, NYS Genetic Service Program Director

Wednesday, May 28, 2008, 12:00 PM - 1:00 PM EST
Resource Repository
Strategies for Success

Technology has allowed a fundamental shift in our ability to share information. Not only can organizations create an online "face", but they can greatly improve access to their products and resources. Genetic Alliance Resource Repository has taken that ability to the next level with the addition of advanced searching, user account management, video and audio streaming, and many other features. Join us to find out how you can use this new shared resource.

Presenters:
Amelia Chappelle, Associate Director of Resources and Services, Genetic Alliance
James C. O'Leary, Chief Operating Officer, Genetic Alliance

Wednesday, June 11, 2008, 12:00 PM - 1:00 PM EST
National Society of Genetic Counselors (NSGC)
Meet Your Neighbors

Wednesday, June 25, 2008, 12:00 PM - 1:00 PM EST
Newborn Screening Financial, Ethical, Legal and Social Issues Project
Hot Topics in Genetics and Advocacy

Join us when we present the Newborn Screening Financial, Ethical, Legal and Social Issues Project. This project is lead by the Hawaii Department of Health in collaboration with the Western States Regional Collaborative. The project includes interviews with parents who have gone through a false positive screen and surveys on newborn screening materials.

Presenter:
Kirsty McWalter - Genetic Counselor, Hawaii Department of Health

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