News
See what others have to say about Genetic Alliance in this list of news articles, videos, talks, and more from external sources around the world.
2017
January 6, 2017- UNC Catalyst initiative aims to create, share tools to fight rare diseases
2016
July 26, 2016- Thanks to Social Media, Rare Progress on Rare Diseases
May, 2016- Thirty Years of Transforming Healthcare
March 31, 2016-Women's History Month Profile: Natasha Bonhomme
March 3, 2016- Social Entrepreneurship and Innovation
2014
May 14, 2014- Exclusive Interview with Sharon Terry on her personal entrepreneurship, Cultural Entrepreneurship Institute Berlin
July 1, 2014- In Genetic Haystacks, We're All Needles
June 18, 2014- Incorporation of Patient Perspective on Disease and Treatment Options Critical in Drug Development and Review
2013
November 15, 2013- Free the Data's first move: Opening data for breast cancer research
November 11, 2013- Advocacy groups crowdsourcing patient views on risk-benefit of drugs
November 6, 2013- 3 neat ways to participate in crowdsourced cancer and Alzheimer’s disease research
November 4, 2013- Genetic Alliance & PhRMA Announce Pilot Initiative to Advance Patient-Focused Drug Development
June 24, 2013- Genetic Alliance Selects Oracle Health Sciences Network to Help Patients Gain Access to Clinical Trials
2011
Levenson, Deborah. Genetic alliance marks 25 years. (2011). American Journal of Medical Genetics, 155A(12), ix-x.
Terry, S. F., Horn, E. J., Scott, J., & Terry, P. J. (2011). Genetic Alliance registry and BioBank: A novel disease advocacy-driven research solution. Personalized Medicine, 8(2), 207-213.
2009
Reed, K., Weaver, M., Chappelle, A., Furlong, P., Clapp, K., Miller, R., . . . Terry, S. F. (2009). Who said it? When did they say it? How did they know? Deciding when to trust or trash genetics health information. (poster). 59th Annual Meeting of the American Society of Human Genetics., (October).
Sidler, M., & Jones, N. (2009). Genetics interfaces: Representing science and enacting public discourse in online spaces. Technical Communication Quarterly, 18(1), 28-48. doi:10.1080/10572250802437317.
2007
Zimmermann, J. (2007). Report on the genetic alliance summit. Genetic Testing, 11(4), 477-479.
2004
No genotype left untreated (2004). Nature Publishing Group. doi:10.1038/ng0504-429.
2001
Larkin, M. (2001). Genetic variation creatively celebrated. Lancet, 358(9278), 341.
2000
Weiss, J., Davidson, M. E., & Asch, A. (2000). Objectives and activities of the genetic alliance. American Journal of Public Health, 90(9), 1477-1478.
