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See what others have to say about Genetic Alliance in this list of news articles, videos, talks, and more from external sources around the world. 


2014

May 14, 2014- Exclusive Interview with Sharon Terry on her personal entrepreneurship, Cultural Entrepreneurship Institute Berlin

July 1, 2014- In Genetic Haystacks, We're All Needles

June 18, 2014- Incorporation of Patient Perspective on Disease and Treatment Options Critical in Drug Development and Review

2013

November 15, 2013- Free the Data's first move: Opening data for breast cancer research

November 11, 2013- Advocacy groups crowdsourcing patient views on risk-benefit of drugs

November 6, 2013- 3 neat ways to participate in crowdsourced cancer and Alzheimer’s disease research

November 4, 2013- Genetic Alliance & PhRMA Announce Pilot Initiative to Advance Patient-Focused Drug Development

June 24, 2013- Genetic Alliance Selects Oracle Health Sciences Network to Help Patients Gain Access to Clinical Trials

2011

Levenson, Deborah. Genetic alliance marks 25 years. (2011). American Journal of Medical Genetics, 155A(12), ix-x.

Terry, S. F., Horn, E. J., Scott, J., & Terry, P. J. (2011). Genetic Alliance registry and BioBank: A novel disease advocacy-driven research solution. Personalized Medicine, 8(2), 207-213.

2009

Reed, K., Weaver, M., Chappelle, A., Furlong, P., Clapp, K., Miller, R., . . . Terry, S. F. (2009). Who said it? When did they say it? How did they know? Deciding when to trust or trash genetics health information. (poster). 59th Annual Meeting of the American Society of Human Genetics., (October).

Sidler, M., & Jones, N. (2009). Genetics interfaces: Representing science and enacting public discourse in online spaces. Technical Communication Quarterly, 18(1), 28-48. doi:10.1080/10572250802437317.

2007

Zimmermann, J. (2007). Report on the genetic alliance summit. Genetic Testing, 11(4), 477-479.

2004

No genotype left untreated (2004). Nature Publishing Group. doi:10.1038/ng0504-429.

2001

Larkin, M. (2001). Genetic variation creatively celebrated. Lancet, 358(9278), 341.

2000

Weiss, J., Davidson, M. E., & Asch, A. (2000). Objectives and activities of the genetic alliance. American Journal of Public Health, 90(9), 1477-1478.

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