Genetic Alliance – About Us

About Us

What We Do

Leveraging the expertise of the genetics community builds capacity in our members through collaborative engagement. Genetic Alliance is at the crossroads of the genetics community—we provide a rich nexus of advocacy and community organizations, government, industry, and private entities. These interactions accelerate translational research; improve the climate for the development of technologies; encourage cohorts for clinical trials; increase the availability of linked, annotated biological resources; and ultimately lead to improved human health.

Informed consumers, advocacy groups, and community organizations create a demand that is met by genomics technologies, tests, and treatments—thus creating a favorable business climate for the early adoption of new products that result from academia, biotechnology, and pharmaceutical organizations. In our central position in the genetics community, we are able to empower individuals and advocacy organizations to help better the lives of their constituents: individuals and families living with genetic conditions.

Funding

Genetic Alliance is a 501 (c)(3) not-for-profit organization. Genetic Alliance programs and initiatives are made possible with funding from government agencies, private donations and industry contributions. Genetic Alliance has two continuing grants focused on consumer genetics education and family health history with Heath Resources Services Administration/Department of Health and Human Services/Maternal Child Health Bureau/Genetic Services Branch (HRSA/DHHS/MCHB/GSB). In 2005, The Centers for Disease Control (CDC) awarded Genetic Alliance a five-year cooperative agreement to develop Access to Credible Genetics Resources.

The success of Genetic Alliance programs and our mission as a whole depends on the generosity of our supporters. You can make a tax-deductible donation at any time.

Approved by Board of Directors, April 2008