Genetic Alliance is the world's leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities.

Genetic Alliance’s network includes more than 1,000 disease-specific advocacy organizations as well as thousands of universities, private companies, government agencies, and public policy organizations. The network is a dynamic and growing open space for shared resources, creative tools, and innovative programs.

Over the past 24 years, Genetic Alliance has been the voice of advocacy in genetics. Advocacy in the 21st century, however, requires new definitions and new focus. We dissolve boundaries to foster dialogue that includes the perspectives of all stakeholders: from industry professionals, researchers, healthcare providers, and public policy leaders to individuals, families, and communities. In a rapidly changing world, Genetic Alliance understands that nothing short of the transformation of our mission, our goals, even our Board of Directors will suffice to transform health.

We transform health through genetics. We promote an environment of openness centered on the health of individuals, families, and communities.

Openness forms both the process and product for Genetic Alliance.

Our goal is to build capacity within the genetics community by being fluid, dynamic, and efficient; we work to eliminate obstacles and limitations through:

Novel Partnerships
Genetic Alliance convenes diverse stakeholders--including disease-specific advocacy organizations, universities, companies, government agencies, and policy organizations--to explore and create novel partnerships in advocacy. Our network of thousands of organizations provides an open space for shared resources, creative tools, and dozens of timely programs.

Informed Decision Making
Genetic Alliance revolutionizes access to information to enable translation of research into services and individualized decision making. We offer technical assistance to organizations, build and sustain robust information systems, and actively work for public policies that promote the advancement of healthcare for the common good.

Individual, Family, and Community Perspectives
Genetic Alliance identifies solutions to emerging problems and reduces obstacles to rapid and effective translation of research into accessible technologies and services that improve human health. In all we do, we integrate individual, family, and community perspectives to improve health systems.

Read our Mandate for Quality Genetic Services here.

Genetic Alliance is a 501 (c)(3) not-for-profit organization. Our programs and initiatives are made possible with funding from government agencies, foundations, private donations, industry contributions and fee for service partnerships. We fulfill our mission, in part, through seven federal grants totaling $12 million over five years.

The success of Genetic Alliance activities and our mission as a whole depends on the generosity of our supporters. You can make a tax-deductible donation at anytime.