About Us
Genetic Alliance is the world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities.
Genetic Alliance’s network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations. The network is a dynamic and growing open space for shared resources, creative tools, and innovative programs.
Since 1986, Genetic Alliance has been the voice of advocacy in genetics. Advocacy in the 21st century, however, requires new definitions and new focus. We dissolve boundaries to foster dialogue that includes the perspectives of all stakeholders: from industry professionals, researchers, healthcare providers, and public policy leaders to individuals, families, and communities. In a rapidly changing world, Genetic Alliance understands that nothing short of the transformation of our mission, goals, and even our Board of Directors will suffice to transform health.
Mission
Genetic Alliance improves health through the authentic engagement of communities and individuals. We employ innovation through novel partnerships, connected consumers, and smart services.
Goals
Our goal is to build capacity within the genetics community by being fluid, dynamic, and efficient; we work to eliminate obstacles and limitations through:
- Novel Partnerships
- Genetic Alliance convenes diverse stakeholders—including disease-specific advocacy organizations, universities, companies, government agencies, and policy organizations—to explore and create novel partnerships in advocacy. Our network of thousands of organizations provides an open space for shared resources, creative tools, and dozens of timely programs.
- Informed Decision-Making
- Genetic Alliance revolutionizes access to information to enable translation of research into services and individualized decision-making. We offer technical assistance to organizations, build and sustain robust information systems, and actively work for public policies that promote the advancement of healthcare for the common good.
- Individual, Family, and Community Perspectives
- Genetic Alliance identifies solutions to emerging problems and reduces obstacles to rapid and effective translation of research into accessible technologies and services that improve human health. In all we do, we integrate individual, family, and community perspectives to improve health systems.
Read our Mandate for Quality Genetic Services here.
Funding
Genetic Alliance is a 501 (c)(3) not-for-profit organization. Genetic Alliance’s work is supported by a blend of funding from government grants and contracts, industry and corporate support, individual donations, and fees generated by services and events. We continually work to diversify our funding sources. A key part of this diversification plan is to secure strategic, fee-for-service partnerships that leverage our expertise, serve the needs of the field and community and bring greater financial sustainability to the organization.
The success of Genetic Alliance activities and our mission as a whole depend on the generosity of our supporters. You can make a tax-deductible donation at anytime.
