Programs

Genetic Alliance has developed a series of programs designed to increase the visibility of genetics and advocacy, establish strong networks and advance important campaigns, including community based family history. Our current programs include:

Community Centered Family Health History

Genetic Alliance is partnering with a diverse group of communities to create tailored family health history tools.  We believe that accessible tools produced by the community, for the community, will promote conversations about health within the family and translate knowledge of family health history into healthy choices.  Check back often to read about the project and see our products as we progress. 

This project is supported through a cooperative agreement from the Genetic Services Branch of the Maternal Child Health Bureau/HRSA/DHHS.

Consumer Focused Newborn Screening

Genetic Alliance has received two cooperative agreements from the DHHS, Health Resources and Services Administration (HRSA) Genetic Services Branch of the Maternal and Child Health Bureau. Both grants are three-year special projects of regional and national significance. These projects will put forward models based on consumer and medical home perspectives to minimize harm and maximize the benefits of the NBS system for all participants. Read the full press release here.

Advocate Partnership Program

Advocates attend annual conferences of partner organizations and participate in a tailored advocate-based track that centers around exclusive meetings with genetics professionals, including representatives from academia, research, industry, and government.

Access to Credible Genetics Resources Network

A Centers for Disease Control and Prevention (CDC) cooperative agreement to provide consumers and health professionals with increased access to quality information on the etiology, diagnosis, treatment and management of individuals with Duchenne and Becker muscular dystrophy (DBMB) and Fragile X syndrome (FXS).

Past Programs