Genetic Alliance integrates public policy to bring about systems change, convenes space for dynamic dialogue, and engages in true diverse stakeholder engagement. We transform health through genetics, promoting an environment of openness centered on the health of individuals, families, and communities. Genetic Alliance brings together diverse stakeholders that create novel partnerships in advocacy; integrates individual, family, and community perspectives to improve health systems; and revolutionizes access to information to enable translation of research into services and individualized decision making. Our rich network of thousands of organizations, including health professionals, researchers, industry, government, disease-specific and community organizations, and individuals and families affected by genetic conditions, provides a unique forum that allows us to convene open space surrounding public policy initiatives. Our public policy lens is focused on what matters: better health for individuals and families.

We connect the robust expertise of the genetics community with the millions of individuals and families affected by genetic conditions to identify opportunities to remove barriers and streamline access, but above all, to carve out new paths toward our ultimate goal: improved health.

Our public policy activities include convening the genetics community for deep personal and systems level analysis surrounding the impact of potential public policy priorities, to proactively inform the policymaking process; ensuring wide stakeholder engagement in government decision making; educating policymakers about the needs of consumers relative to genetics and health, monitoring and influencing key legislation and its implementation; and providing the public and genetics community with educational materials, resources, and tools to ensure the benefits of public policies are realized.

Learn more about our current policy priorities.