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Advocacy, Education & Empowerment

Hepatitis Foundation International Launches HepPRN

CENA announces the launch of HepPRN on October 21, 2014. Spotlight on Hepatitis Foundation International.

Free The Data announces new partnership with Rep. Debbie Wasserman-Schultz!

The Congresswoman continues her dedication to advancing medical research and improving care for hereditary breast and ovarian cancer. Watch her discuss Free the Data and hereditary cancer on PBS' To The Contrary.

Debbie Wasserman Shultz

New Video From Baby's First Test

Learn about the newborn screening process through this simple and informative cartoon.

Watch the Baby's First Test Video

Get to know the Genetic Alliance Programs!

Babys First Test, Genes In Life, Disease InfoSearch, PEER and more are all powered by Genetic Alliance. Together we are committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities. Click to learn more!

Genetic Alliance Programs

BioTrust holds the space for individuals, families, and communities to participate in translational research.  The revolution in health will only happen in a trust environment with people at the heart of it. BioTrust examines and creates policies, and provides novel tools for participants to actively engage in research.  The BioTrust Ethics Team, together with the Genetic Alliance Institutional Review Board, provides oversight.

With better health as the goal, Genetic Alliance puts genetic and genomic information into context for individuals and families. Our tools increase access to services and provide the information people need, when they need it. From family health history to whole genome sequencing, our combination of accessible, culturally competent print and web resources, multimedia, and health information technologies empower people to make healthy decisions.

Engaged families are informed, educated and have access to information and services when they need them most. If you are planning a family or advocating for your child, Expecting Health meets a critical need in the health delivery landscape. We have tools that lead to more informed decision-making, educate consumers around appropriate testing and public health services, and help individuals navigate the complex health care delivery system.

Highlights

Disease InfoSearch is a resource for patients, clinicians and researchers.

A place to learn about all the ways genetics is a part of your life.

It’s time to take control of our health! Come together to Free The Data.

Find resources on advocacy for accessible communities with Advocacy Atlas!

The American Society of Human Genetics is the primary professional membership organization for human genetic specialists worldwide.

Building online health and wellness communities for patients and caregivers

Learn all you need to know about Newborn Screening.

Stay Up To Date with News, Action Steps, Meetings & More!

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