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Advocacy, Education & Empowerment

In Memoriam

Remembering John Walsh

Thank You!

Thank you to everyone who helped us begin Co-creating a Healthy Future!

PCORnet Commons is Live!

This new online space was created with insight and feedback from the PCORnet community with the goal of providing people with the opportunities to increase collaboration, efficiency, and people-centeredness in clinical research. Take a look!

Genetic Alliance at Capital Area Food Bank

Genetic Alliance decided to spend a portion of our holiday party giving back to the community by volunteering at the Capital Area Food Bank  

Genetic Alliance Intern Alumni Lunch

Several of our previous interns stopped by for an afternoon of lunch and catching up. It was exciting to learn where people have found themselves and how their time at Genetic Alliance helped them get there.

BioTrust holds the space for individuals, families, and communities to participate in translational research.  The revolution in health will only happen in a trust environment with people at the heart of it. BioTrust examines and creates policies, and provides novel tools for participants to actively engage in research.  The BioTrust Ethics Team, together with the Genetic Alliance Institutional Review Board, provides oversight.

With better health as the goal, Genetic Alliance puts genetic and genomic information into context for individuals and families. Our tools increase access to services and provide the information people need, when they need it. From family health history to whole genome sequencing, our combination of accessible, culturally competent print and web resources, multimedia, and health information technologies empower people to make healthy decisions.

Engaged families are informed, educated and have access to information and services when they need them most. If you are planning a family or advocating for your child, Expecting Health meets a critical need in the health delivery landscape. We have tools that lead to more informed decision-making, educate consumers around appropriate testing and public health services, and help individuals navigate the complex health care delivery system.

Highlights

Learn about internship opportunities at Genetic Alliance during the fall, spring, and summer!

Disease InfoSearch is a resource for patients, clinicians and researchers.

A place to learn about all the ways genetics is a part of your life.

March 9-10, 2017 we enjoyed two days of celebration, ideation and collaborative visioning as we began “Co-Creating a Healthy Future”

Find resources on advocating for accessible communities with Advocacy Atlas!

Seattle Children's Center for Children with Special Needs provides resources and information to families and providers of children with special needs in Washington state. 

Building online health and wellness communities for patients and caregivers

Learn all you need to know about Newborn Screening.

Stay Up To Date with News, Action Steps, Meetings & More!
 

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4301 Connecticut Ave NW, Suite 404, Washington DC 20008-2369 | Tel: 202.966.5557 | Fax: 202.966.8553 | EIN 52-1571905

Except where otherwise noted, content on this site is licensed under a Creative Commons Attribution 3.0 License.