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Advocacy, Education & Empowerment

Cross-condition survey

Genetic Alliance is launching a cross-condition survey to gather information on individuals’ experiences with coronavirus vaccines. Any and all communities are invited to join the effort and send the survey to their members. 

Dr. Francis Collins on the Coronavirus Vaccines

Dr. Collins was a leader in the development of coronavirus vaccines, and is working hard to make sure they are widely available. He describes the scientific evidence for the safety and efficacy of the vaccine and why it is important to get vaccinated when it is your turn. 

PEER Registry and Studies Webinar

Watch this webinar recording showcasing demos of the participant experience, the admin dashboard, and the research environment, and an invitation to submit an application to the Genetic Alliance Registry Bootcamp - training for communities to establish and sustain a successful registry.

 

REGISTRY

BOOTCAMP

A program designed to guide you through a methodological process that will ensure not only a sophisticated technology platform, but success in its use and meeting overall registry goals.

 

 

ALL COMMUNITIES

ARE WELCOME

PEER offers communities (the sponsor) a simple way to establish a registry. It is a sophisticated registry and study system, and a cost-effective solution to your registry needs.

Highlights


Everyone is encouraged to participate—this is a borderless data sharing community for both those feeling healthy and those needing medical attention.

The Genetic Alliance IRB reviews and monitors studies involving human participants to ensure that the highest ethical standards adhear involving the use of humans as subjects in research. 

 
Curated and crowd sourced disease information to help individuals access quality and credible information. Over 10,000 conditions listed.

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