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Advocacy, Education & Empowerment

Happy Holidays!

It has been a great year for health advocacy, and Genetic Alliance appreciates everyone's support! Look back on 2014 by viewing our recent press releases.

Thank You for Spreading the Word

Over 2700 copies of A Guides to Family Health History were ordered by individuals around the U.S. for National Family Health History Day. Thank you for helping spread the word and starting families on the track to better health. Free Booklets are still available to order all year round.

A map of all the locations our booklets were delivered to

Check Out WikiAdvocacy Today

WikiAdvocacy is a community of advocacy organizations sharing practical information about education, research, development, and much more. You can help build the website by including your experiences or knowledge from the field.

BioTrust holds the space for individuals, families, and communities to participate in translational research.  The revolution in health will only happen in a trust environment with people at the heart of it. BioTrust examines and creates policies, and provides novel tools for participants to actively engage in research.  The BioTrust Ethics Team, together with the Genetic Alliance Institutional Review Board, provides oversight.

With better health as the goal, Genetic Alliance puts genetic and genomic information into context for individuals and families. Our tools increase access to services and provide the information people need, when they need it. From family health history to whole genome sequencing, our combination of accessible, culturally competent print and web resources, multimedia, and health information technologies empower people to make healthy decisions.

Engaged families are informed, educated and have access to information and services when they need them most. If you are planning a family or advocating for your child, Expecting Health meets a critical need in the health delivery landscape. We have tools that lead to more informed decision-making, educate consumers around appropriate testing and public health services, and help individuals navigate the complex health care delivery system.

Highlights

Disease InfoSearch is a resource for patients, clinicians and researchers.

A place to learn about all the ways genetics is a part of your life.

It’s time to take control of our health! Come together to Free The Data.

Find resources on advocacy for accessible communities with Advocacy Atlas!

Dyskeratosis Congenita Outreach provides info and support  to families affected by DC. It also encourages and educates medical providers and researchers..

Building online health and wellness communities for patients and caregivers

Learn all you need to know about Newborn Screening.

Stay Up To Date with News, Action Steps, Meetings & More!

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4301 Connecticut Ave NW, Suite 404, Washington DC 20008-2369 | Tel: 202.966.5557 | Fax: 202.966.8553 | EIN 52-1571905

Except where otherwise noted, content on this site is licensed under a Creative Commons Attribution 3.0 License.