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Advocacy, Education & Empowerment

COVID Survey Opportunity for Communities

Create a place for your community to share data through a simple health and stress assessment. This system can be used for any community that wants to understand the impact of COVID on them – not just disease or patient support/advocacy/research.   

Advocacy means more than research conducted with participants at the table. It means that the people are leading the research effort. Our tools, partnerships, and projects build capacity in communities, enable new cross-sector partnerships, and place control in the hands of the people.


Expecting Health is a team of key leaders in health communication and pregnancy and pediatric health, with a strong passion for bridging actionable, evidence-based information with the everyday realities of life for families. We know that education and support needs don’t end at childbirth. Instead, a whole new set of education and support needs emerge.

Genetic Alliance is an innovator in implementing and measuring programs in stakeholder engagement. We believe that diverse stakeholder leadership is imperative for elevating voices; leveraging stories; identifying research questions; improving participation and retention; and ensuring that knowledge makes its way back to people.


Learn about Genetic Alliance’s exciting internship program, with opportunities for Fall, Spring, and Summer!

Stay up-to-date with Genetic Alliance news, opportunities, meetings, and more!

Check out this comprehensive condition resource for patients, clinicians and researchers.

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4301 Connecticut Ave NW, Suite 404, Washington DC 20008-2369 | Tel: 202.966.5557 | Fax: 202.966.8553 | EIN 52-1571905

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