Advocacy, Education & Empowerment

Disease InfoSearch

# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

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Organization Search

# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

What is this?

Trust It or Trash It? Tool

The Trust It or Trash It? tool provides a guide to help you think critically about the quality of health information.

Three questions guide you through the process:

1) Who said it?
2) When did they say it?
3) How did they know?

Start using the Trust It or Trash It? tool. Are you developing educational materials? See the more in-depth Developer Version at www.trustortrash.org/developer.

Spotlight

2010 Genetic Annual Conference
Advancing Novel Partnerships
July 15-18

The Genetic Alliance Annual Conference is consistently inspirational and enables partnership among all stakeholders: advocates and community leaders, health and industry professionals, policymakers and academicians. We hope you will join us for another conference journey.

Check out our upcoming events for more information.

Genetic Alliance Webinar

Strategies for Success
Genetic Alliance BioBank Grant Application.
March 17, 2010
12:00 pm - 1:00 pm ET

Hot Topics in Genetics and Advocacy
How and Why Genes are Patentable.
April 1, 2010
12:00 pm - 1:00 pm ET

Strategies for Success
In the Eye of the Beholder.
April 21, 2010
12:00 pm - 1:00 pm ET

Click here for more information.

Gene Screen: A Night of Film on Health and Genetics

Now open for submissions!

On July 15, 2010, after Genetics Day on the Hill, Genetic Alliance will host the 2nd Annual Gene Screen in conjunction with our Annual Conference, Advancing Novel Partnerships.

Check out our new video RFP to learn more about the call for submissions! All entries must be postmarked by May 31, 2010.

Click here for more information.

Does it Run in the Family? Online Tool Unveiled

www.doesitruninthefamily.org

Genetic Alliance launched a free online customizable family health history tool: the Does It Run In the Family? tool was developed so anyone can create personalized booklets about health for their families and communities.

Access the tool at
www.doesitruninthefamily.org!

Network

Meet Your Neighbors

The mission of the Fibrous Dysplasia Foundation is to provide information, advocacy and support for patients, medical professionals and the general public and promote research for diagnosis, treatment and a cure for Fibrous Dysplasia (FD) and McCune-Albright's Syndrome (MAS), Cherubism and related diseases. The organization strives to improve the quality of life for affected individuals and their families.

www.fibrousdysplasia.org

View all our 2009 "neighbors"

Policy

New NIH-FDA Collaboration

On February 24, the National Institutes of Health (NIH) and the Food and Drug Administration (FDA) announced a new initiative to accelerate the translation of scientific breakthroughs into innovative medical therapies for patients. The project will marry translational science and regulatory science to formally integrate the unique roles of the two agencies, ensuring that regulatory review considerations become part of scientific research planning, and vice versa. The NIH and FDA also jointly announced a Request For Applications, making $6.75 million in awards available over three years for organizations and institutions to study the application of novel technologies and approaches...

Read the NIH press release

View the Request For Applications

Genetic Alliance Internship Program

Genetic Alliance is now accepting applicants for its Summer 2010 Internship Program. Genetic Alliance offers internship opportunities in a wide variety of fields, including health policy, biomedical research, diagnostics and drug development, health information technology, bioethics, informatics, genetic counseling, public health genomics, and education. The deadline to submit an application to the program is March 21.

Learn more.

Questions? Contact Andria Cornell at acornell@geneticalliance.org

Pediatric Care Innovation Awards

Department of Health and Human Services (HHS) Secretary Kathleen Sebelius announced $100 million in federal grant funds to be made available over the next five years to improve the quality and delivery of healthcare services for children enrolled in Medicaid and the Children’s Health Insurance Program (CHIP). The Children’s Health Insurance Program Reauthorization Act (CHIPRA), signed into law in February 2009, authorized the awards to put forth models to evaluate provider performance and implement meaningful health information technology strategies, including the development of a new pediatric electronic health record format.

View the HHS news release, including information about the awardees

Sharon Terry Testifies at House Science & Tech Hearing

On February 24, Sharon Terry, Genetic Alliance President & CEO, testified before the House Committee on Science and Technology, Subcommittee on Technology and Innovation. The hearing sought to answer the question: “How Can National Institutes of Standards and Technology (NIST) Better Serve the Needs of the Biomedical Research Community in the 21st Century?”

Read Sharon Terry’s Complete Testimony

Newborn Screening
Creating Consumer Focused Models

Family Health History
A Community-Based Approach

ATCG
Access to Credible Genetics RN