Genetic Alliance – Advocacy, Education & Empowerment

HOME

JOIN

	Disease InfoSearch What's this? Select: # A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

	Organization Search What's this? Select: # A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Resource Repository What's this?

GINA passed 414-1 in the House!!!

Genetic Information Nondiscrimination Act will be the first civil rights act passed by the Congress in almost twenty years!

Special thanks to GINA’s advocates in the House, especially Rep. Louise Slaughter and Rep. Judy Biggert, for their leadership and perseverance on this important issue!

Now, everyone with DNA can rejoice - this marks the first time that both chambers of Congress have passed GINA in the same session.

Click here for the full press release.

Click here to see the list of organizations who support GINA.

Coming Soon: What does the passage of GINA mean?

Click here for Early-Bird Registration to the Genetic Alliance Annual Conference - July 11-13 2008.

Spotlight

Community Centered Family Health History Program Awards

Innovation. Integration.

Genetic Alliance invites interested parties to apply for CCFHH Program Awards to integrate the Does it Run in the Family? toolkit into their existing programs or initiatives.

Full proposals are due Friday, May 9.

Network

Policy

Meet Your Neighbors

The MLD Foundation grew out of family conferences in 1999 and 2000 for MLD - metachromatic leukodystrophy. Officially founded in 2001, the Foundation facilitates compassion, increases awareness, influences research, and promotes education. The slogan “We C.A.R.E.” highlights these areas of focus, and the Foundation offers support for MLD families until a therapy and a cure are developed. The MLD Foundation reaches approximately 200 families daily and is currently facilitating the clinical trial process with
several therapies over the next 36 months, starting an education and awareness program, and expanding its involvement in the International MLD Registry.

The MLD Foundation has been active in the Advocates Partnership Program and Genetic Alliance public policy initiatives, like Genetics Day on the Hill.

www.mldfoundation.org

Take action to support GINA!

Thank Congress for passing GINA. Tailor and send a note to your elected officials.

Family Health History A Community-Based Approach		ATCG Access to Credible Genetics RN