Advocacy, Education & Empowerment

Disease InfoSearch

Are you looking for disease information or support? You’ve come to the right place! Simply type in the name of a condition above and Disease InfoSearch will locate quality information from a database of more than 13,000 conditions and thousands of support groups and foundations.

Baby's First Test

Baby's First Test houses the nation's newborn screening clearinghouse. The clearinghouse provides current educational materials, services information, and resources about newborn screening at the local, state, and national levels.

PEER

A unique, award-winning technology solution for collecting health data directly from individuals.

CENA

CENA provides methods and tools that empower everyday people to be full participants in the research enterprise, work with a variety of stakeholders to prioritize research questions most important to them, and drive new studies to alleviate suffering in their own communities.

BioTrust

We believe individuals, families, and communities are experts of their own needs. Our programs and tools are therefore designed to give people the tools to shape their own healthcare by finding resources for conditions/diseases, conducting research for new treatments, or partnering with providers to improve care.

Genes In Life

Individuals, families and communities must be fully aware and engaged to empower people to make healthy decisions. From family health history to whole genome sequencing, our tools, multimedia, and health information technologies increase access to health services and provide information people need when they need it.

Expecting Health

Expecting Health is a team of key leaders in health communication and pregnancy and pediatric health, with a strong passion for bridging actionable information with the everyday realities of women’s experiences and family lives. We know that education and support don’t start or end at childbirth.