Genetic Alliance as an innovator in implementing and measuring programs in stakeholder engagement that support an increase in knowledge and impact. We believe that diverse stakeholder leadership is imperative for elevating voices; leveraging stories; identifying research questions; improving participation and retention; generating insight; and ensuring that knowledge makes its way back to people for better care.
Advocacy, Education & Empowerment
Advocacy means more than research conducted with participants at the table. It means that the people are leading the research effort. Our tools, partnerships, and projects build capacity in communities, enable new cross-sector partnerships, and place control in the hands of the people.
Expecting Health is a team of key leaders in health communication and pregnancy and pediatric health, with a strong passion for bridging actionable, evidence-based information with the everyday realities of life for families. We know that education and support needs don’t end at childbirth. Instead, a whole new set of education and support needs emerge.
Highlights
Learn about Genetic Alliance’s exciting internship program, with opportunities for Fall, Spring, and Summer!
Stay up-to-date with Genetic Alliance news, opportunities, meetings, and more!
Check out this comprehensive condition resource for patients, clinicians and researchers.
Go-to newborn screening source of information for families, healthcare professionals, the public, and state screening programs, including technical assistance.
