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2011 Genetic Alliance Annual Conference

Enjoying your Labor Day Weekend?

bush signs gina Well here’s a reason to relax a little more…

A little more than 2 years ago the Genetic Information Non Discrimination Act (GINA) was signed into law, which prohibited your employer to use family health history and genetic test results in making decisions about your employment.

For more information on GINA, please visit www.ginahelp.org/

Handcrafted Cocktails at the 2010 ASHG Meeting

Join Genetic Alliance for an evening of cocktails and hors d'oeuvres right across the street from the Convention Center at The Passenger. First drinks at this neighborhood speakeasy are on us!

November 4, 2010 from 7:00pm - 10:00pm

Trivia!

How many babies are screened each year for 29 heritable diseases?

ashg

A) 40

B) 4,000

C) 4,000,000 +

Spotlight

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Where in the World is Genetic Alliance Staff?

September 23 - October 11, 2010:

Genetic Alliance offers periodical sabbaticals to staff (one month every three years), but we have always been too busy to use them! Sharon Terry, president and CEO, will be the first! She will spend September 23 to October 11, 2011, on Omey Island, off the coast of Ireland. There, in beautifully simple surroundings, she will work on some writing projects in pastoral serenity (and a bit of Irish food and drink). This will give her an opportunity to focus on both Genetic Alliance and Ashoka projects. Thanks to Council member Kemp Battle, for sharing his lovely cottage!

August 30:

Sharon Terry participated in a Health IT Standards Committee meeting.

Genetic Alliance Webinar

Miss the Registry and BioBank Question and Answer Session on September 1st?

No problem!

Click here
to get the session material.

Click here to access
past webinar recordings.

Network

Meet Your Neighbors

The University of Utah Center for Alzheimer's Care, Imaging and Research (CACIR) devotes its efforts toward conducting translational, patient-oriented, multidisciplinary clinical research and to delivering the latest brain imaging technologies to clinicians treating those with dementia. The CACIR also seeks to form an alliance between patients with dementia, their families, specialists, and researchers and to develop and model innovative care systems that link medical care with community resources. The Hispanic Health Taskforce of Utah empowers minorities through health education and the reduction of disparities in health.

View all our "neighbors"

Click here to become a "neighbor"!

Policy

Do You Subscribe to the Weekly Policy Bulletin?

Genetic Alliance participates in international, federal, and regional policy news and utilizes our rich network of thousands of organizations to provide you with the most up-to-date information on genetics and health public policy. The Weekly Policy Bulletin puts legislative updates, Congressional and regulatory agency activity, newly released publications and reports, and opportunities for engagement in the policymaking process at your fingertips.

To subscribe, simply email policy@geneticalliance.org.

EHR Incentives for Medicaid Doctors

On Monday, August 30, the Centers for Medicare & Medicaid Services (CMS) published guidelines for Medicaid physicians detailing the federal aid they can expect in implementing electronic health records (EHRs) in their practice.

Read this week's policy bulletin for more.

We want your feedback!

Participate in a quick survey to help us make the policy bulletin work for you.

Stem Cell Policy Fails to Hold Up In Court

On Monday, August 23, a federal judge ruled against President Obama's 2009 executive order expanding embryonic stem cell research, citing that the policy violated a ban on federal funds being used for the destruction of embryos. Yesterday, August 31, the Justice Department appealed the ruling.

Read this week’s policy bulletin for more

Newborn Screening
Creating Consumer Focused Models

Family Health History
A Community-Based Approach

ATCG
Access to Credible Genetics RN