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NEWBORN SCREENING SUMMIT:
Envisioning a Future for Newborn Screening

December 7 - 8, 2009
Bethesda North Marriott Hotel & Conference Center

Join healthcare providers, researchers, state program facilitators, families, laboratory professionals, and others to vision and strategize about the U.S. newborn screening system.

During the summit we will ask:
    * What is at stake for the future?
    * How can we answer the call for access to information and the
    integration of perspectives as the newborn screening system
    continues to develop?
Registration information and summit details are now available.

Spotlight

“Recognition as one of the Washingtonian’s ‘Great Places to Work’ is a testament to our philosophy that investing in our staff is our most important work. Our mission is to transform health through genetics and we believe that transformation begins with each person. Our philosophy is manifest in our environment, and as a result we attract and retain talented individuals with a passion for personal and professional growth.”

--Sharon Terry, President and CEO, Genetic Alliance

Network
Meet Your Neighbors


From its origins in a tiny newspaper classified ad in 1966, the National Psoriasis Foundation has grown to be the largest psoriasis patient advocacy organization in the world.

Located in Portland, Ore., the Psoriasis Foundation is run by a dedicated staff and governed by a lay Board of Trustees, all of whom have had their lives impacted by psoriasis and psoriatic arthritis.


Support GINA’s Implementation

Express your support for the prompt implementation of the Genetic Information Nondiscrimination Act (GINA), and for the interim final rule implementing provisions of the law that will take effect on December 7, 2009.

On October 1, the Departments of Health and Human Services, Labor, and the Treasury released an interim final rule that implements the health insurance provisions of GINA. Join the Coalition for Genetic Fairness and diverse stakeholders in the health community as we call on the agencies with regulatory responsibility for GINA to oppose proposals to weaken the rule by exempting employer-based wellness programs from GINA’s protections, and to proceed with GINA’s prompt implementation.

To sign on in support, please email your organization’s name to Vafa Talishli, vtalishli@geneticalliance.org, by close of business this Wednesday, November 18.

Access the letter


Family History icon Family Health History
A Community-Based Approach
ATCG icon ATCG
Access to Credible Genetics RN
 
Graphic Design by
Melissa Allen Design
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557    Fax: 202.966.8553
info@geneticalliance.org