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Understanding Genetics: A Guide for Patients and Health Professionals

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Understanding Genetics is an educational resource for knowledgeable consumers and health professionals, particularly those without specialty training in genetics. The manual begins with a basic introduction to genetics concepts, followed by detailed information on topics such as diagnosis of genetic conditions, family history, newborn screening, genetic counseling, understanding patient stories, and ethical, legal, and social issues in genetics. The manual is customizable by geographic region and includes specific resources to assist in patient care, patient and professional education, and locating specialty genetic services. It was written and reviewed by a wide variety of stakeholders in the genetics and health community.

Cómo entender la genética:
una guía para pacientes y profesionales médicos en la región de Nueva York y el Atlántico Medio

Descargue la guía en español

 

Understanding Genetics:
A New York - Mid-Atlantic Guide for Patients and Health Professionals

Download the entire manual in English

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Understanding Genetics:
A New England Guide for Patients and Health Professionals

Download the entire manual
Download the introduction and New England Resources and Services listing (Chapter 10) in Spanish

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Understanding Genetics:
A District of Columbia Guide for Patients and Health Professionals

Download the entire manual

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Genetic Alliance encourages wide distribution of this, and all our publications under a Creative Commons Attribution 3.0 license. To discuss customization of or any other questions about this resource, please contact us at info@geneticalliance.org or call 202-966-5557.

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4301 Connecticut Ave NW, Suite 404, Washington DC 20008-2369 | Tel: 202.966.5557 | Fax: 202.966.8553 | EIN 52-1571905

Except where otherwise noted, content on this site is licensed under a Creative Commons Attribution 3.0 License.