World Arnold Chiari Malformation Association

General Organizational Information

Organization Name:

Year Established:

1996

Mission Statement:

Staffed by volunteers, the World Arnold Chiari Malformation Association is committed to providing support, current information, and understanding to those affected by the Arnold Chiari malformation and syringomyelia. It is also our goal to raise the awareness of, and educate the medical community as to the complex nature of this disease and how it affects the lives of those who have it.

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Arnold Chiari Malformation

Organizational Contact Information

Title:

Staff Member

First Name:

Bernard

Last Name:

Meyer

Address:

31 Newtown Woods Road

Newtown Square, PA, 19073

Phone:

+1 610 353 4737

Email:

internautbhm@worldnet.att.net

Website Address:

http://www.pressenter.com/~wacma

Resources and Services Provided

Information provided for:

Other

Range of services include:

Medical referrals

Peer support

Other

Peer-to-peer counseling

Telephone helpline

Other

Educational materials include:

Other

Conferences/workshops for:

Other

Financial assistance for:

Other