Turner Syndrome Society of the United States

General Organizational Information

Organization Name:

Organization Acronym:

TSSUS

Year Established:

1987

Brochure:

TSSUS_TriFold_FINAL.pdf

Type of organization:

Condition(s)-specific National

Mission Statement:

The Turner Syndrome Society of the U. S. creates awareness, promotes research, and provides support for all persons touched by Turner syndrome. We offer local support, international support, scholarships, a nationwide conference with over 400 attendees, and promote research studies to our membership of over 600.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Turner syndrome

45, X

Gonadal Dysgenesis

Organizational Contact Information

Title:

Executive Director

Degree:

MA, LPC

First Name:

Cindy

Last Name:

Scurlock

Address:

11250 West Rd Ste G

Houston, TX, 77065

United States

See map: Google Maps

Phone:

+1 832 912 6006

Fax:

+1 832 912 6446

Toll Free Number:

+1 800 365 9944

Email:

tssus@turnersyndrome.org

Website Address:

http://www.turnersyndrome.org

Resources and Services Provided

Languages spoken:

English

Spanish

Printed materials available in:

English

Spanish

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Parents

Fathers

Mothers

Siblings

Grandparents

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Peer Support

Non-medical services

Financial referrals

Awareness Programs

Advocacy

Speakers

Pen pal program

Telephone helpline

E-mail list

Summer Camp

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Journal articles on condition

Research updates

Video(s)/Movie(s)

Audiotape(s)

Lending library

Resource guide

Student materials

Membership directory

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

Financial assistance for:

Organizational

Scholarships