Propionic Acidemia Research Network

General Organizational Information

Organization Name:

Organization Acronym:

PARnet

Branch/Affiliation:

Propionic Acidemia Foundation

Year Established:

2009

Type of organization:

International Condition(s)-specific organization

Mission Statement:

The Propionic Acidemia Research Network facilitates communication between academic and clinical researchers, physicians and families to promote better treatments and a cure for propionic acidemia.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Serves the following conditions

Diseases:

Propionic acidemia

Organizational Contact Information

Degree:

M.A.

First Name:

Janice

Middle Initial:

Last Name:

Boecker

Address:

10305 Hansa Cove

Austin, 78739

United States

See map: Google Maps

Phone:

+1 512 394 0977

Email:

jsboecker@paresearch.org

Website Address:

http://www.paresearch.org

Resources and Services Provided

Languages spoken:

English

German

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Families of affected individuals

The public

Teachers

Students

Researchers

Other

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Other

Political action

Genetic information

Clinical or treatment centers

Other

Educational materials include:

Journal articles on condition

Pamphlet(s)

Research updates

Website

Other

Conferences/workshops for:

Other

Financial assistance for:

Other