Chicago Center for Jewish Genetic Disorders

General Organizational Information

Organization Name:

Year Established:

1999

Brochure:

Center Brochure 2010.pdf

Type of organization:

Condition(s)-specific organization

Mission Statement:

The Center is dedicated to gathering and disseminating knowledge about Jewish genetic disorders and hereditary cancers. Its mission is to educate and serve health care professionals, clergy and the Jewish community.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Beta Thalassemia

Tay-Sachs Disease

Tay-Sachs, Late Onset

Rare Disorders

Ovarian cancer

Niemann-Pick Disease, Type A

Myelin Disorders

Mucolipidosis IV

Maple Syrup Urine Disease (MSUD)

Leukodystrophy

Iron Defeciency Anemia

Hereditary Non-Polyposis Colorectal Cancer (HNPCC)

Hereditary Cancer

Hemoglobinopathies

Glycogen Storage Disease

Genetic Conditions

Gaucher Disease

Fanconi Anemia

Familial Mediterranean fever

Familial Dysautonomia

Factor XI Deficiency

Dystonia

Cystic Fibrosis

Crohn Disease

Congenital Adrenal Hyperplasia

Colorectal Cancer

Cancer, Risk

Cancer, Rectal

Cancer, Ovarian

Cancer, Non-Polyposis Colorectal

Cancer, Hereditary

Cancer, Breast - Inflammatory

Cancer, Breast

Cancer

Canavan Disease

Breast Cancer

BRCA 2

BRCA 1

Bloom Syndrome

Organizational Contact Information

Title:

Director

First Name:

Karen

Last Name:

Litwack

Address:

30 South Wells St.

Chicago, IL, 60606

Phone:

+1 312 357 4718

Fax:

+1 312 855 3295

Email:

jewishgeneticsctr@juf.org

Website Address:

http://www.jewishgenetics.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Russian

Information provided for:

Health care professionals

The public

Students

Range of services include:

Referrals to local chapter or group

Professional counseling

Crisis intervention

Medical referrals

Genetic testing

Genetic counseling

Genetic information

Rehabilitation resource referrals

Referrals for non-medical services

Non-medical services

Financial referrals

Advocacy

Speakers

Telephone helpline

E-mail list

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Resource guide

Student materials

Conferences/workshops for:

Public

Professionals