Amyotrophic Lateral Sclerosis Association

General Organizational Information

Organization Name:

Year Established:

1972

Type of organization:

National organization

Mission Statement:

The mission of the ALS Association is to lead the fight to cure and treat ALS through global, cutting edge research, and to empower people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Serves the following conditions

Diseases:

Amyotrophic Lateral Sclerosis (ALS)

Organizational Contact Information

Title:

Vice President of Patient Services

First Name:

Sharon

Last Name:

Matland

Address:

1275 K Street NW Suite 1050

Washington, DC, 20005

United States

See map: Google Maps

Toll Free Number:

+1 800 782 4747

Email:

alsinfo@alsa-national.org

Website Address:

http://www.alsa.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

The public

Range of services include:

Referrals to local chapter or group

Medical referrals

Clinical or treatment centers

Loan of medical devices/equipment

Respite care

Referrals for non-medical services

Political action

Advocacy

Telephone helpline

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Research updates

Conferences/workshops for:

Researchers

Professionals