Amyloidosis Support Groups, Inc.

General Organizational Information

Organization Name:

Organization Acronym:

ASG

Year Established:

2009

Type of organization:

National organization

Mission Statement:

Amyloidosis Support Groups, Inc., a 501 (c) 3 non profit corporation was formed for the primary purpose of starting and maintaining Amyloidosis Support Groups throughout the United States, dedicated to providing peer group support to patients, caregivers, families and friends of those touched by this life threatening disease.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Amyloidosis

Organizational Contact Information

Prefix:

Mrs.

Title:

President

First Name:

Muriel

Last Name:

Finkel

Address:

232 Orchard Drive

Wood Dale, 60191

United States

See map: Google Maps

Phone:

+1 630 350 7539

Fax:

+1 847 350 0577

Toll Free Number:

+1 866 404 7539

Email:

muriel@finkelsupply.com

ListServe:

www.amyloidosisonline.com

Website Address:

http://www.amyloidosissupport.com

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Legislators

Media

Students

Researchers

Other

Range of services include:

Referrals to matching individuals/families

Medical referrals

Peer support

Financial referrals

Other

Peer-to-peer counseling

Awareness programs

E-mail list

Telephone helpline

Speakers

Advocacy

Other

Educational materials include:

Fact sheet(s)

Journal articles on condition

Pamphlet(s)

Lending library

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Other

Financial assistance for:

Transportation

Other