Conference 2008: Transformational Leadership Agenda

Conference 2008: Transformational Leadership Agenda

Conference 2008
Agenda
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Thursday, July 10th 2008
ALL DAY     Genetics Day on the Hill
7:30 PM - 10:00 PM     " In The Family" Film Screening and Talkback
Friday, July 11th 2008
7:00 AM - 7:00 PM     Registration
7:30 AM - 8:30 AM       Continental Breakfast
8:30 AM - 5:30 PM     DAYLONG WORKSHOP AND SYMPOSIA

Leadership Workshop

Organizational Development Workshop

Research Symposium

Policy Symposium
5:30 PM - 6:00 PM     Conference Highlights Overview
6:00 PM - 7:00 PM     Reception & Exhibits Open
7:00 PM - 1:00 AM     GINA Victory Celebration Dinner
Saturday, July 12th 2008
7:00 AM - 6:00 PM       Registration
7:15 AM - 8:00 AM     Morning Walk
8:00 AM - 9:00 AM     Networking Breakfast
9:00 AM - 10:30 AM     WORKSHOPS: Session I

IN THE FAMILY: Exploring Issues Related to Predispositional Genetic Testing

Community Screening and Counseling for Sickle Cell Disease

The Challenges and Rewards of Developing, Maintaining, and Translating Disease-Specific Facts Sheets for Parents

Collaborating for Genetics Education: Roadblocks and Rewards

Bringing Social Justice to Genetic Technologies
10:30 AM - 11:00 AM     Morning Coffee Break
11:00 AM - 12:30 PM     WORKSHOPS: Session II

Using Family History to Improve Your Health: A School-Based Approach for Reaching Students and Families

Newborn Screening: Joint Responsibilities

Making the Most of Your Educational Materials

The Power of Youth: Nurturing Next Generation Leaders

Crossing All the T's: Translating Human Genomics Discoveries into Population Health Benefits
12:30 PM - 1:30 PM     Lunch
1:30 PM - 5:00 PM     Curbside Consult
1:30 PM - 3:00 PM     WORKSHOPS: Session III

Family History for Communities: Creating a Unique Tool

Assuring Quality in Parent to Parent Support Services

Patient Empowerment: Research and Experience

Coverage and Reimbursement: The Ultimate Hurdles

After the Screening: Assuring Long-Term Follow-Up After Diagnosis Through Newborn Screening
3:00 PM - 3:30 PM     Afternoon Coffee Break
3:30 PM - 5:00 PM     WORKSHOPS: Session IV

Nutrition and Genetics: Translating Science to Practice

Electronic Health Records: What's happening and why you should be involved

Family Networking and Leadership

De-identified Samples: The Humanity of it All

Education and Resources for the Public about Rare and Common Genetic Disorders: A Trans-NIH Approach
6:00 PM - 7:00 PM     Reception
7:00 PM - 10:00 PM     Awards Banquet
10:00 PM - 12:00 AM     After Hours Reception
Sunday, July 13th 2008
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