Genetic Alliance - 2008 Conference: Program

Agenda

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Thursday, July 10^th 2008

ALL DAY				Genetics Day on the Hill
7:30 PM - 10:00 PM				" In The Family" Film Screening and Talkback

Friday, July 11^th 2008

7:00 AM - 7:00 PM				Registration
7:30 AM - 8:30 AM				Continental Breakfast
8:30 AM - 5:00 PM				DAYLONG WORKSHOP AND SYMPOSIA Leadership Workshop Organizational Development Workshop Research Symposium Policy Symposium
5:30 PM - 6:00 PM				Session on Conference Highlights
6:00 PM - 7:00 PM				Reception & Exhibits Open
7:00 PM - 12:00 AM				GINA Victory Celebration Dinner

Saturday, July 12^th 2008

7:00 AM - 6:00 PM				Registration
7:15 AM - 8:00 AM				Morning Walk
8:00 AM - 9:00 AM				Networking Breakfast
9:00 AM - 10:30 AM				WORKSHOPS: Session I IN THE FAMILY: Exploring Issues Related to Predispositional Genetic Testing Community Screening and Counseling for Sickle Cell Disease The Challenges and Rewards of Developing, Maintaining, and Translating Disease-Specific Facts Sheets for Parents Collaborating for Genetics Education: Roadblocks and Rewards Bringing Social Justice to Genetic Technologies
10:30 AM - 11:00 AM				Morning Coffee Break
11:00 AM - 12:30 PM				WORKSHOPS: Session II Using Family History to Improve Your Health: A School-Based Approach for Reaching Students and Families Newborn Screening: Joint Responsibilities Making the Most of Your Educational Materials The Power of Youth: Nurturing Next Generation Leaders Crossing All the T's: Translating Human Genomics Discoveries into Population Health Benefits
12:30 PM - 1:30 PM				Buffet Lunch
1:30 PM - 5:00 PM				Curbside Consult
1:30 PM - 3:00 PM				WORKSHOPS: Session III Family History for Communities: Creating a Unique Tool Assuring Quality in Parent to Parent Support Services Patient Empowerment: Research and Experience Coverage and Reimbursement: the Ultimate Hurdles After the Screening: Assuring Long-Term Follow-Up After Diagnosis Through Newborn Screening
3:00 PM - 3:30 PM				Afternoon Coffee Break
3:30 PM - 5:00 PM				WORKSHOPS: Session IV Nutrition and Genetics: Translating Science to Practice Electronic Health Records: What's happening and why you should be involved Family Networking and Leadership De-identified Samples: The Humanity of it All Education and Resources for the Public about Rare and Common Genetic Disorders: A Trans-NIH Approach
6:00 PM - 7:00 PM				Reception
7:00 PM - 10:00 PM				Awards Banquet
10:00 PM - 12:00 AM				After Hours Reception

Sunday, July 13^th 2008

7:15 AM - 8:00 AM				Morning Service
7:15 AM - 8:00 AM				Morning Walk
8:00 AM - 9:00 AM				Networking Breakfast
9:00 AM - 10:30 AM				PANELS: Session I Novel Partnerships: Gateway to Success Race, Ethnicity, Gender and Genetics
10:30 AM - 11:00 AM				Light Fare
11:00 AM - 1:00 PM				PANELS: Session II Direct to Consumer Genetic Testing: Revolution or Risk? Healthcare Reform: Is Universal Coverage Enough?
1:00 PM - 1:30 PM				Closing Debrief & Comments Led by Sharon F. Terry

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