Community Centered Family Health History
Genetic Alliance partnered with a diverse group of communities to create tailored family health history tools. We believe that accessible tools produced by the community, for the community, will promote conversations about health within the family and translate knowledge of family health history into healthy choices. Read our complete list of goals and objectives.
The first round of community partners adapted the Does It Run In the Family? toolkit, disseminated it to community members, and evaluated whether the tool encourages healthy decision-making and collection of family health history. The second round of partners also customized and disseminated booklets, with an emphasis on integrating family health history into ongoing programs and initiatives.
Read the project monograph! “Collaboration Across Communities: How Do You Make Research Community-Specific and Universally-Relevant?” details the diverse approaches employed by community partners as well as overall strategies and lessons learned.
Does It Run In the Family?
The Does It Run In the Family? template was created using feedback from all project partners and the National Advisory Committee. The highlighted and circled sections of the template are customizable. These booklets are also available in Spanish.
Communication is an important part of family health history. We’ve created optional supplemental materials that may help individuals talk with their family and healthcare provider.
|Purpose: This questionnaire can be used to collect valuable health information from relatives without doing an interview. Paired with a family newsletter, this may be a quick and easy way to collect information. Remember that not everyone will feel comfortable sharing his or her information this way, so be sure to explain exactly what you are using the information for.|
CCFHH Program Awards
In 2008, Genetic Alliance invited organizations to customize the Does It Run In the Family? Toolkit and disseminate it within existing programs and initiatives to integrate conversations about family health history seamlessly into diverse communities across the country. Read project proposals and final report summaries and learn more about our partner organizations.
|Purpose: The Customizable Online Toolkit is available for use by communities and families to create tailored versions of the Does It Run In the Family? toolkit. Choose photos, personal health stories, quotations, and health condition information from an online file library or enter your own, and download and print your customized toolkit.|
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This project is supported (in part) by cooperative agreement U33MC06836 with the Genetic Services Branch of the Maternal and Child Health Bureau, Health Resources and Services Administration (HRSA). The content of this webpage is solely the responsibility of Genetic Alliance and does not necessarily represent the official views of HRSA.