Organizations: T
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TEF VATER International Support Network
(updated on 11/24/2009)
If you are a mother, father, friend, aunt, uncle, grandfather, grandmother or anyone searching for information on babies, specifically your baby or a baby you know, born with VATER, esophageal atresia and/or traceoesophageal fistula, this site was created for YOU!
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Tennessee Department of Health
(updated on 11/24/2009)
The mission of the Tennessee Department of Health is to promote, protect, and improve the health of persons living in, working in, or visiting the state of Tennessee.
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Tetrasomy/Pentasomy X Support List
(updated on 11/24/2009)
The goals of the Tetrasomy X /Pentasomy X Support Group are to comfort, console and support the girls and their families affected by these conditions from diagnosis to daily life, to recognize the need for early intervention in speech, physical, and occupational therapy, to recognize the rich quality of life that can be achieved, to share the joy and happiness these special girls and women bring to our lives, to educate and inform the medical community and the world of these conditions, to provide a network of compassionate friends who will empathize and understand what you are experiencing, and to provide hope.
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Texas Department of State Health Services
(updated on 11/24/2009)
The mission of the Texas Department of State Health Services is to identify and describe the patterns of birth defects in Texas and to collaborate with others in finding causes of birth defects, working towards prevention, and linking families with services.
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Texas Neurofibromatosis Foundation
(updated on 11/24/2009)
We are committed to meeting the needs of people challenged with neurofibromatosis by providing care, comfort, support, information, education, funding and other resources for its treatment, prevention and cure.
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Texas Regional Genetics Network
(updated on 11/24/2009)
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The Aarskog Syndrome Parents Support Group
(updated on 11/24/2009)
The Aarskog Syndrome Parents Support Group's mission is to supply all persons affected with Aarskog syndrome with information and support via e-mail or regular mail delivery.
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The Cochrane Collaboration
(updated on 12/02/2009)
The Cochrane Collaboration consists of a team of people who are interested in producing high quality systematic reviews of controlled clinical trials in cystic fibrosis (CF) and other genetic disorders.
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The Myelin Project
(updated on 03/14/2011)
Our mission is to end the human suffering caused by genetic demyelinating diseases.
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The Myositis Association
(updated on 04/28/2010)
The mission of The Myositis Association is to find a cure for inflammatory and other related myopathies, while serving those affected by these diseases.
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The NOMID Alliance
(updated on 09/02/2010)
The NOMID Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with CAPS (Cryopyrin-Associated Periodic Syndromes) and other autoinflammatory syndromes. These CAPS disorders include: Neonatal-Onset Multisystem Inflammatory Disease (NOMID)-also known as Chronic, Infantile, Neurological, Cutaneous and Articular Syndrome (CINCA), Muckle-Wells (MWS), and Familial Cold Autoinflammatory Syndrome (FCAS)-also known as Familial Cold Urticaria (FCU).
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The PSP Association
(updated on 11/24/2009)
The mission of the PSP Association is the conquest of PSP, through effective research, education, welfare and communication.
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TMJ Association, Ltd.
(updated on 04/30/2010)
The TMJ Association (TMJA) is a non-profit organization whose mission is to improve the quality of healthcare and lives of everyone affected by temporomandibular joint and muscle disorders.
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Tourette Syndrome Association, Inc.
(updated on 05/12/2010)
Founded in 1972, TSA is the only national voluntary non-profit membership organization whose mission is to identify the cause, find the cure and control the effects of Tourette Syndrome through education, research and service.
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Transverse Myelitis Association
(updated on 08/24/2010)
The Transverse Myelitis Association provides educational information, advocates for and supports research efforts for a spectrum of rare neuroimmunologic diseases of the central nervous system, which include: Transverse myelitis, Acute Disseminated Encephalomyelitis (ADEM), Optic Neuritis, and Neuromyelitis Optica (Devic's disease).
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Trimethylaminuria Foundation
(updated on 11/24/2009)
Our mission is to: improve quality of life for people with trimethylaminuria, primarily through research initiatives to find a cure or improved treatment options, increase awareness, and provide peer support.
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Triple X Support Group
(updated on 11/24/2009)
Our mission is to inform parents and professionals about Triple X Syndrome and to raise awareness and earlier diagnoses.
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Trisomy 18 Foundation
(updated on 01/23/2012)
We envision a world where Trisomy 18 is a preventable and treatable condition and all parents have access to compassionate, knowledgeable care that respects the humanity and potential of their child diagnosed with Trisomy 18. We work to bring this vision into reality through commitment to our mission: to guide the search for a cure and treatments, to educate and support health care professionals, and to create a caring worldwide community for affected families.
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Trisomy 9 International Parent Support
(updated on 11/24/2009)
9TIPS is an international support group for families dealing with Trisomy 9 covering all variations. Our goal is to provide families with support through a parent network system, to share their successes and experiences with each other.
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Tuberous Sclerosis Alliance
(updated on 12/02/2009)
The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis complex, while improving the lives of those affected.
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Turner Syndrome Foundation, Inc.
(updated on 05/11/2010)
The goal of the Turner Syndrome Foundation (TSF) is to support research initiatives and develop programs which will increase professional awareness and enhance medical care of those affected by Turner syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a bright and healthy future for all young girls and women with Turner syndrome.
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Turner Syndrome Society of the United States
(updated on 10/18/2010)
The Turner Syndrome Society of the U. S. creates awareness, promotes research, and provides support for all persons touched by Turner syndrome. We offer local support, international support, scholarships, a nationwide conference with over 400 attendees, and promote research studies to our membership of over 600.
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Twin to Twin Transfusion Syndrome Foundation
(updated on 11/24/2009)
The first and only nonprofit organization in the world solely dedicated to providing immediate and lifesaving educational, emotional and financial support to families, medical professionals, and other caregivers before, during, and after a diagnosis of twin to twin transfusion syndrome. Dedicated to saving the babies, improving their future health and care, providing NICU, special needs and bereavement support, furthering medical research, and keeping families together the way twins are meant to be.
