Our mission is to impact the lives of those affected by FSH Muscular Dystrophy by: financially supporting FSHD research, stimulating new research and funding pilot studies, and supporting researchers by hosting FSHD research workshops.

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Parent to Parent of New York State's mission is to connect and support parents of children with special needs.

PGC's mission is to help individuals, families, and health care providers with education and care of galactosemia.

Our mission is to provide information and resources to cancer patients and their families so they have access to natural and allopathic treatment information upon which to base their treatment decisions as a first line of defense.

PAGER offers support and information to families affected by pediatric GERD and the professionals who treat them.

To provide convenient access to science-based information to help better understand and manage the periodic paralyses. To stimulate interaction between the periodic paralysis community and various professional disciplines that may be able to bring light to this complex and often misunderstood collection of disorders. To provide the tools and a forum for open discussion of the diverse issues associated with these disorders. To promote an increasing level of awareness of these disorders, leading to increased research, improved management guidelines, improved diagnostic protocols, and ultimately, their prevention and cure

We are an e-mail forum providing support and information for individuals, families and friends affected by PJS (Peutz-Jeghers syndrome) & JPS (Juvenile Polyposis syndrome). Medical professionals and researchers may join too.

Piedmont Health Services and Sickle Cell Agency's mission is to provide outreach, education, screening and case management for people with high-risk health problems. Our vision is to become a leading community-based preventive health and outreach agency for all people.

Our purpose is to network families and individuals with PRS and provide information to anyone who has an interest.

To promote research, provide education, and raise awareness within the medical community in order to ensure early diagnoses of children with Pallister-Killian Syndrome (PKS). To provide resources and support to families, therapists and caregivers of children with PKS.

Our aims are: to provide information, advice and support to those affected by Polycystic Kidney Disease; to fund research into determining the causes of PKD, discovering treatments and a cure; and to raise awareness of PKD, providing information about PKD to patients, the public, the medical community and the media.

Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi syndrome (PWS), their families, and interested professionals.

Our mission is to discover the cure and effective treatment for the rapid-aging disease Progeria, and its aging related disorders.

Project DOCC is a non-profit organization whose mission is to use the experience of family caregivers and adult patients to enhance health care practice and inform more responsive policies so that individuals with chronic illness/disability and their families have the services needed to live successfully in the community. Project DOCC seeks to put the individual and family at the center of the health care system, regardless of age, diagnosis, or prognosis.

The Propionic Acidemia Research Network facilitates communication between academic and clinical researchers, physicians and families to promote better treatments and a cure for propionic acidemia.

The specific purposes for which this corporation is organized are: To disseminate timely and accurate information about Prune Belly Syndrome to patients, family members, physicians, and other interested parties, to provide means for patients and relatives to share experiences, support one another, and improve their medical care, to encourage, advise, and establish standards for the diagnosis and treatment of Prune Belly Syndrome, to encourage and foster biomedical and other pertinent research on Prune Belly Syndrome, and to undertake all actions as deemed appropriate by the Board of Directors to carry out the forgoing purposes to the extent permitted under state and federal law.

Public Responsibility in Medicine and Research ﾖ not posted as mission Public Responsibility in Medicine and Research is dedicated to advancing the highest ethical standards in the conduct of research.

The mission of the Pulmonary Hypertension Association (PHA) is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness.

PXE International initiates, conducts and funds research on pseudoxanthoma elasticum (PXE), educates clinicians and supports affected individuals.