Organizations: N
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Nail Patella Syndrome Networking/Support Group
(updated on 11/24/2009)
Our mission is to provideup-to-date information, support and networking opportunities to people with NPS, their families and their doctors.
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Nail Patella Syndrome Worldwide
(updated on 08/02/2010)
We strive to raise awareness for Nail Patella syndrome in the medical and lay communities. This is achieved by sponsoring yearly conferences and providing educational materials.
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Narcolepsy Network, Inc.
(updated on 12/02/2009)
Narcolepsy Network, Inc.'s mission is to: educate the public about narcolepsy and other related sleep disorders, support individuals with narcolepsy, their families and friends, promote the efficient diagnosis of narcolepsy, and encourage and promote research for narcolepsy.
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National Adrenal Diseases Foundation
(updated on 11/24/2009)
The National Adrenal Diseases Foundation is a non-profit organization dedicated to providing support, information and education to individuals having Addison's disease as well as other diseases of the adrenal glands.
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National Alliance for Hispanic Health
(updated on 11/24/2009)
Our mission is to improve the health and well-being of Hispanics.
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National Alliance for Thrombosis and Thrombophilia
(updated on 04/30/2010)
NATT members are committed to supporting research, education, advocacy and support on behalf of those affected by, and at risk for, blood clots.
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National Alliance on Mental Illness
(updated on 06/02/2010)
NAMI (National Alliance on Mental Illness) is the nation's largest grassroots organization for people with mental illness and their families. Founded in 1979, NAMI has affiliates in every state and in more than 1,100 local communities across the country. NAMI recognizes that the key concepts of recovery, resiliency and support are essential to improving the wellness and quality of life of all persons affected by mental illness. NAMI members and friends work to fulfill our mission by providing support, education, and advocacy. Our many activities include: public education and information activities, peer education and support, raising awareness and fighting stigma, and state and federal advocacy.
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National Alopecia Areata Foundation
(updated on 05/07/2010)
The mission of the National Alopecia Areata Foundation (NAAF) is to support research to find a cure or acceptable treatment for alopecia areata, to support those with the disease, and to educate the public about alopecia areata.
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National Association for Continence
(updated on 11/24/2009)
National Association For Continence is a national, private, non-profit 501(c)(3) organization dedicated to improving the quality of life of people with incontinence. NAFC's purpose is to be the leading source for public education and advocacy about the causes, prevention, diagnosis, treatments, and management alternatives for incontinence.
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National Association for Parents of the Visually Impaired
(updated on 11/24/2009)
NAPVI is a national organization that enables parents to find information and resources for their children who are blind or visually impaired, including those with additional disabilities.
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National Ataxia Foundation
(updated on 04/28/2010)
The National Ataxia Foundation is dedicated to improving the lives of persons affected by ataxia through support, education, and research.
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National Breast Cancer Coalition
(updated on 11/24/2009)
NBCC's mission is to eradicate breast cancer, by focusing the administration, U.S. Congress, research institutions and consumer advocates on breast cancer. NBCC encourages all those concerned about this disease to become advocates for action and change.
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National Center for Education in Maternal and Child Health
(updated on 11/24/2009)
The National Center for Education in Maternal and Child Health provides national leadership to the maternal and child health community in three key areas--program development, education, and state-of-the-art knowledge--to improve the health and well-being of the nation's children and families.
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National Center for Learning Disabilities
(updated on 05/12/2010)
The National Center for Learning Disabilities (NCLD) works to ensure that the nation's 15 million children, adolescents and adults with learning disabilities have every opportunity to succeed in school, work and life.
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National Coalition for Cancer Survivorship
(updated on 11/24/2009)
NCCSメs mission is to advocate for quality cancer care for all Americans.
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National Consortium On Deaf-Blindness
(updated on 11/24/2009)
Our goal is to help parents, teachers, and others by providing them with information to foster the skills, strategies and confidence necessary to nurture and empower deaf-blind children.
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National Coordinating Center for the Genetics and Newborn Screening Regional
(updated on 11/24/2009)
The National Coordinating Center (NCC) and seven Genetic Service and Newborn Screening Regional Collaborative Groups (RCs) were established by MCHB/HRSA, Genetic Services Branch as part of on-going efforts to improve the health of children and their families by promoting the translation of genetic medicine into public health and healthcare services. The RCs work to strengthen and support the genetics and newborn screening (NBS) capacity of the States and, therefore, the Nation, using a regional approach to addressing maldistribution of genetic services and resources. A fundamental goal of the program is to bring services closer to local committees. The NCC enhances the activities of the seven RCs by providing the infrastructure, coordination, technical assistance and resources necessary to address issues of universal importance, thereby avoiding duplication of efforts and allowing the regions to focus on their unique areas of need. The NCC also facilitates local projects and uses communities identified through the RCs to pilot test materials for policymakers, health professionals and families.
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National Down Syndrome Adoption Network
(updated on 11/20/2010)
NDSAN's mission is that every child with Down syndrome grow up in a loving, caring home.
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National Down Syndrome Congress
(updated on 05/05/2011)
The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.
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National Down Syndrome Society
(updated on 11/24/2009)
The National Down Syndrome Society's mission is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.
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National Endowment for Alzheimer's Research
(updated on 04/28/2011)
At NEAR, our mission is to investigate the underlying causes of Alzheimer's and to develop rapid clinical interventions both for Alzheimer's and other brain disorders. A secondary mission is to promote public awareness and education with respect to Alzheimer's disease and related dementia, and to encourage the involvement of individuals, businesses, foundations, and government in finding a cure.
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National Fabry Disease Foundation
(updated on 04/30/2010)
The mission of the National Fabry Disease Foundation is to help ensure that all individuals with Fabry disease are identified, diagnosed and treated in time to avoid a diminished quality of life or life threatening consequences, to provide assistance to individuals with Fabry disease and their families, to provide Fabry disease education and awareness, to promote continued research and data-gathering to improve treatment opportunities and to find a cure.
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National Fathers' Network
(updated on 11/24/2009)
Our mission is to celebrate and support fathers and families raising children with special health care needs and developmental disabilities.
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National Foundation for Ectodermal Dysplasias
(updated on 06/03/2010)
The National Foundation for Ectodermal Dysplasias’ mission is to empower and connect people touched by ectodermal dysplasias through education, support, and research.
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National Foundation for Facial Reconstruction
(updated on 11/24/2009)
Established in 1951, the National Foundation for Facial Reconstruction addresses the plight of children with a facial disfigurement by supporting state - of - the - art treatment, innovative research, psychosocial support and medical training that inspires a new generation of pediatric doctors.
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National Fragile X Foundation
(updated on 12/02/2009)
The National Fragile X Foundation unites the Fragile X community to enrich lives through educational & emotional support, promote public & professional awareness, & advance research toward treatments & a cure for Fragile X.
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National Gaucher Foundation
(updated on 05/16/2011)
In addition to raising millions of dollars to support and promote research towards the cause, treatments and a cure for Gaucher disease, the NGF's mission is to provide assistance and resources to families and individuals who are affected by the disease. To meet the ever-increasing needs of the Gaucher community, the NGF provides a wide range of financial, educational, legislative, mentor and outreach programs for families and individuals with Gaucher disease.
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National Graves Disease Foundation
(updated on 11/24/2009)
National Graves' Disease Foundation Purpose and Mission is to provide current medical information and referral and resource information to those with Graves' disease, provide social and psychological support for those with Graves' disease, provide information that incorporates a multi-disciplined approach to the treatment of Graves' disease, provide public education through the distribution of literature, lectures and presentations in the media and the community.
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National Healthy Mothers, Healthy Babies Coalition
(updated on 11/24/2009)
The mission of the National Healthy Mothers, Healthy Babies Coalition is to improve the health and safety of mothers, babies and families through education and collaborative partnerships of public and private organizations.
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National Hemophilia Foundation
(updated on 12/02/2009)
The National Hemophilia Foundation is dedicated to finding better treatments and cures for bleeding and clotting disorder and to preventing the complications of these disorders through education, advocacy and research.
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National Institute of Alcohol Abuse & Alcoholism, NIH
(updated on 11/24/2009)
NIAAA provides leadership in the national effort to reduce alcohol-related problems by conducting and supporting research in a wide range of scientific areas, coordinating and collaborating with other institutions and organization, and translating research findings to health care providers, researchers, policymakers, and the public.
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National Keratoconus Foundation
(updated on 09/02/2010)
The National Keratoconus Foundation (NKCF) is an outreach program of the Discovery Eye Foundation. The NKCF dedicated to the dissemination of information about keratoconus to patients, their families, and eye care professionals.
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National Lymphedema Network
(updated on 05/06/2010)
The mission of the NLN is to create awareness of lymphedema through education and to promote and support the availability of quality medical treatment for all individuals at risk for or affected by lymphedema.
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National Marfan Foundation
(updated on 12/02/2009)
Together with our National Volunteer Network, comprised of Chapters, Support Groups and other local members, we disseminate accurate information, provide support and foster research nationwide, as well as to the international Marfan community. Since 1995, the Foundation has been committed to helping not only those with Marfan syndrome, but also those with related connective tissue disorders.
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National MPS Society
(updated on 05/11/2010)
The National MPS Society exists to find cures for MPS and related diseases. We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases.
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National Multiple Sclerosis Society
(updated on 11/24/2009)
To end the devastating effects of MS
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National Niemann-Pick Disease Foundation, Inc.
(updated on 11/24/2009)
The National Niemann-Pick Disease Foundation, Inc. (NNPDF) is an international, voluntary, nonprofit organization made up of parents, medical and educational professionals, friends, relatives and others who are interested in fighting Niemann-Pick disease.
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National Oral Health Information Clearinghouse
(updated on 03/01/2010)
The mission of the National Institute of Dental and Craniofacial Research (NIDCR) is to improve oral, dental and craniofacial health through research, research training, and the dissemination of health information. The National Oral Health Information Clearinghouse (NOHIC), a service of the NIDCR focuses on the information needs of special care patients and persons with medical or disabling conditions that can affect their oral health.
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National Organization for Albinism and Hypopigmentation (NOAH)
(updated on 05/14/2010)
We provide information and support regarding albinism, promote public/professional education, facilitate networking and encourage research/funding that will lead to improved diagnosis/management.
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National Organization for Rare Disorders, Inc.
(updated on 06/18/2010)
The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
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National Organization of Disorders of the Corpus Callosum
(updated on 05/24/2010)
Our mission is to enhance the quality of life and promote opportunities for individuals with disorders of the corpus callosum and to raise the profile, understanding, and acceptance of these disorders through education, advocacy, networking and facilitating research efforts.
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National Ovarian Cancer Coalition, Inc.
(updated on 05/10/2010)
To raise awareness and promote education about ovarian cancer. The Coalition is committed to improving the survival rate and quality of life for women with ovarian cancer.
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National PKU Alliance
(updated on 08/25/2010)
The National PKU Alliance works to improve the lives of individuals and families with PKU and pursue a cure.
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National Psoriasis Foundation
(updated on 08/24/2010)
Our mission is to find a cure for psoriasis and psoriatic arthritis and to eliminate their devastating effects through research, advocacy and education.
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National Rehabilitation Information Center
(updated on 11/24/2009)
NARIC is committed to serving anyone, professional or lay person, who is interested in disability and rehabilitation, including consumers, researchers, family members, health professionals, educators, rehabilitation counselors, students, librarians, and administrators.
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National Scoliosis Foundation
(updated on 11/24/2009)
The National Scoliosis Foundation (NSF) is a patient-led nonprofit organization dedicated since 1976 to helping children, parents, adults, and health-care providers to understand the complexities of spinal deformities such as scoliosis.
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National Self-Help Clearinghouse
(updated on 11/24/2009)
The National Self-Help Clearinghouse is a not-for-profit organization that was founded in 1976 to facilitate access to self-help groups and increase the awareness of the importance of mutual support.
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National Society of Genetic Counselors, Inc.
(updated on 12/02/2009)
The mission of the National Society of Genetic Counselors is to promote the genetic counseling profession as a recognized and integral part of health care delivery, education, research and public policy.
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National Spasmodic Dysphonia Association
(updated on 08/24/2010)
The mission of the National Spasmodic Dysphonia Association is to advance medical research into the causes of and treatments for spasmodic dysphonia, promote physician and public awareness of the disorder, and provide support to those affected by spasmodic dysphonia.
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National Tay-Sachs & Allied Diseases Association, Inc.
(updated on 03/22/2011)
The mission of the National-Tay Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives.
