Organizations: M

  • M-CM Network (updated on 05/25/2011)
    M-CM Network works to improve the lives of individuals with macrocephaly-capillary malformation, a rare genetic syndrome.
  • M.I.S.S. Foundation (updated on 12/02/2009)
    The M.I.S.S. Foundation offers immediate and on-going support for individuals who experience the death of a child from any cause. We have implemented a fatal birth anomalies program.
  • Macular Degeneration Support (updated on 11/24/2009)
    To provide information, support and advocacy for people affected by macular degeneration and similar diseases of the retina leading to central vision loss.
  • MAGIC Foundation (updated on 12/02/2009)
    Provide support/education to families of children with growth disorders & adult affected disorders, through national networking, newsletters, educational brochures, annual convention, kids progra
  • Malignant Hyperthermia Association of the United States (updated on 11/24/2009)
    The mission of MHAUS is to promote optimum care and scientific understanding of MH and related disorders.
  • March of Dimes Foundation (updated on 11/24/2009)
    Our mission is to improve the health of babies by preventing birth defects, premature birth, and infant mortality. We carry out this mission thorough research, community services, education and advocacy to save babiesメ lives.
  • Marinesco-Sj�gren Syndrome Support Group (updated on 11/24/2009)
    Our mission is to provide support to families of people with MSS, expand our network of MSS families, and promote research leading to better diagnosis and eventually a treatment for MSS.
  • Maryland Patient Advocacy Group (updated on 11/24/2009)
    MPAG exists to assure patients and families with acute and/or chronic medical conditions of access to federal and state programs providing income and medical care
  • Massachusetts Down Syndrome Congress (updated on 11/24/2009)
    Our mission is to enhance on a continuous basis the lives of individuals with Down syndrome through the education and support of people with Down syndrome, their families, their friends, their teachers, and the community as a whole. We work to ensure individuals are valued, included, and live fulfilling lives in the community.
  • Meniere's Network (updated on 11/24/2009)
    Helps those with Meniere's
  • Mental Health America (updated on 11/24/2009)
    Mental Health America is dedicated to promoting mental health, preventing mental disorders and achieving victory over mental illness through advocacy, education, research and service.
  • MHE Research Foundation (updated on 12/02/2009)
    The MHE Research Foundation is a nonprofit organization for researchers, families and physicians dealing with Multiple Hereditary Exostoses, a rare genetic bone disease. The MHE Research Foundation five point mission is to REACH, advance and support research, education, and advocacy, in order to bring hope to families affected by this disease.
  • Michigan PKU & Associated Disorders, Inc. (updated on 01/23/2012)
    Our mission is to provide information, helpful hints, resources, etc for the Michigan PKU population.
  • Mid-Atlantic Connection for PKU and Allied Disorders (updated on 01/27/2010)
    The mission of MACPAD is to enrich the lives of individuals and families of individuals with inherited metabolic disorders by disseminating information, providing supportive activities and encouraging the exchange of ideas.
  • Mid-Atlantic Regional Human Genetics Network (updated on 11/24/2009)
    The Mid-Atlantic Regional Human Genetics Network is a partnership of consumers, health care providers and other professionals, government agencies, and commercial enterprises whose mission is t provide opportunities for regionally based collaboration in education, research and other relevant genetic activities, promote access to appropriate high quality and efficiently provided genetic services, develop, facilitate and support the efficient collection and utilization of quality genetics services data, serve as a central resource for current and emerging information about genetics, and support the ethical provision and use of genetics services and data, including a respect for privacy and confidentiality
  • Midwest Women's Vascular Advocates (updated on 01/20/2011)
    Our mission is to support and educate women affected by Fibromsucular Dysplasia and non-inflammatory vascular disease.
  • Minnesota Colorectal Cancer Initiative (updated on 12/19/2011)
    MCCI is a non-profit, community and professional resource that provides information regarding colorectal cancer; personal risk assessment and individual, risk-specific screening recommendations;
  • MitoAction (updated on 03/07/2011)
    MitoAction's mission is to improve the quality of life for everyone affected by mitochondrial disease through support, education, outreach, and advocacy initiatives.
  • MLD Foundation (updated on 12/02/2009)
    We C.A.R.E. The MLD Foundation is focused exclusively on Metachromatic Leukodystrophy. We have four areas of purpose that start with people and families ... facilitating Compassion, increasing Awareness, influencing Research, and promoting Education. Our slogan, "We C.A.R.E." comes from these four areas of purpose.
  • Moebius Syndrome Foundation (updated on 04/26/2010)
    Our mission is to provide information and support to individuals with Moebius Syndrome and their families, promote greater awareness and understanding of Moebius Syndrome, and advocate for scientific research.
  • Mommies Enduring Neonatal Death (updated on 11/24/2009)
    M.E.N.D. (Mommies Enduring Neonatal Death) is a Christian, non-profit organization that reaches out to families who have suffered the loss of a baby through miscarriage, stillbirth, or early infant death.
  • Mountain States Genetics Foundation (updated on 11/24/2009)
    The MSRGCCメs mission is to assess the need for genetic services, promote collaboration and the sharing of resources among genetic professionals, promote cultural sensitivity and consumer participation in genetics-services issues, develop and carryout genetics education for primary care and other health-care providers, assist member states with integrating genetics services into their health programs, monitor the quality of clinical and laboratory genetics services, and Measure the impact of managed care on genetics services within the region and to act to assure comprehensive genetics-service access to all.
  • Movement Disorder Society (updated on 11/03/2010)
    The Movement Disorder Society (MDS) is an international professional society of clinicians, scientists, and other healthcare professionals, who are interested in Parkinson's disease, related neurodegenerative and neurodevelopmental disorders, hyperkinetic movement disorders, and abnormalities in muscle tone and motor control.
  • Mowat Wilson Support (updated on 05/04/2010)
    We are a support group and website where families can share information about Mowat-Wilson Syndrome. Our website includes support group information, a forum, photos and profiles of children with MWS and parent survey pages. We want to help inform the public about this rare condition and to help those affected by it not feel so alone by giving them a place to exchange information and experiences with others in the same situation.
  • Mowat-Wilson Syndrome Support Group (updated on 11/24/2009)
    To offer support to individual's with Mowat-Wilson Syndrome, as well as their families and other interested individuals. To raise awareness of Mowat-Wilson Syndrome.
  • MPD-SUPPORT (updated on 11/24/2009)
    Since 1994, our MPD-SUPPORT web site and free support email list offers interesting information on chronic myelogenous leukemia, polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia, and myelofibrosis. Anyone - patient, family member, or health professional, is welcome to join our growing list of subscribers. Our archives are available for you to research information.
  • Multiple Sclerosis Association of America (updated on 11/24/2009)
    MSAAメs mission is to enrich the quality of life for everyone affected by multiple sclerosis. MSAA also serves to promote greater understanding of multiple sclerosis and the diverse needs and challenges of people with MS.
  • MUMS National Parent-to-Parent Network (updated on 03/24/2011)
    MUMS is a national parent-to-parent organization for parents or care providers of a child with any disability, rare disorder, chromosomal abnormality or health condition. MUMS' mission to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition.
  • Muscular Dystrophy Association (updated on 03/08/2010)
    MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
  • Myasthenia Gravis Foundation of America, Inc. (updated on 11/24/2009)
    Our mission is to facilitate the timely diagnosis and optimal care of individuals affected by myasthenia gravis and closely related disorders and to improve their lives through programs of patient services, public information, medical research, professional education, advocacy and patient care.
  • Myotonic Dystrophy Foundation (updated on 04/29/2010)
    Myotonic Dystrophy Foundation's mission is to lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
  • Myotubular Myopathy Resource Group (updated on 11/24/2009)
    To support and educate families affected by myotubular myopathy and centronuclear myopathy.
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org