Our mission is to be a support system for parents and caregivers of individuals affected with 22q11 deletion and to educate the medical field, education system and the general public about the condition.

Facing Our Risk of Cancer Empowered's mission is to improve the lives of individuals and families affected by hereditary breast and ovarian cancer.

Families of Spinal Muscular Atrophy is dedicated to advancing research and supporting families by eradicating SMA by promoting and supporting research; helping families cope with SMA through informational programs and support; and educating the public and professional community about SMA.

To improve services for all children with disabilities.

Family Voices is a national grassroots clearing house for information and education about ways to assure and improve health care for children with disabilities and chronic conditions. As families and friends, we speak with love and knowledge on behalf or our children with special health care needs.

To provide information and support to families of children and youth with special health care needs and the professionals who serve them in several ways: direct support, parent matching, training, focus groups, topical calls, listservs and conferences.

Association reconnue d�utilit� publique, la F�d�ration des Maladies Orphelines est n�e de la volont� farouche de faire sortir de l�oubli les maladies orphelines et les personnes qui en sont atteintes.

The FG Syndrome Family Alliance, Inc. is a voluntary, 501(c)(3) nonprofit organization dedicated to enhancing the quality of life for those individuals and families affected by FG Syndrome or related disorders through education, peer support, referral, advocacy and research.

To make people aware of fibromyalgia and its affects on the public at large and to the health professionals that are responsible for diagnosing and treating people with the condition.

Our mission is to save the lives of our boys by bringing about awareness through education--of our community and our medical professionals--about the early onset of symptoms of Adrenoleukodystrophy, the simple diagnostic blood test, and treatments. We also have information about the adult onset form, Adrenomyeloneuropathy.

Our mission is to connect and network with FOD families and professionals around the world and to provide ongoing emotional and grief support, family stories, practical information about living with these disorders, and medical updates to inform families of new developments in screening, diagnosis, research and treatment.

The Foundation for Children with Atypical HUS is a not-for-profit 501 (c)(3) organization that provides information to those affected by this rare disease, offers support for patients and families, maintains a registry of cases in the United States, and raises funds for research. The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder.

FNMS is an international support group dedicated to helping those affected by Nager and Miller syndromes. We serve as a clearinghouse of information and link families seeking support, hope and advice.

Our mission is to support research aimed at finding specific treatments and a cure for Fragile X syndrome, the leading inherited cause of mental impairment.

FARA's Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.