Organizations: E
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ECD Global Alliance
(updated on 08/03/2010)
We are a group of Erdheim-Chester Disease (ECD) patients and their loved ones. Our mission is to: provide support to those affected by ECD, raise awareness of ECD, promote research related to ECD and share educational material regarding ECD.
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EDS Today
(updated on 11/24/2009)
The mission of EDS Today is to provide information and support to people living with EDS, their families, and the medical community.
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Ehlers-Danlos National Foundation
(updated on 06/01/2010)
Ehlers-Danlos National Foundation creates resources for those affected by the connective tissue disorder Ehlers-Danlos Syndrome.
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Emmanuel's Foundation
(updated on 11/24/2009)
Emmanuel's Foundation offers guidance, support and friendship to families in a pregnancy or with an infant having a rare, difficult or life threatening medical diagnosis. Emmanuel's Foundation helps families to tap into resources that meet their immediate emotional, spiritual and medical needs in a timely manner.
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Endometriosis Association
(updated on 11/24/2009)
The Endometriosis Association (EA) is a 501(c)(3) nonprofit international organization founded in 1980, that provides support and information for women with endometriosis, educates the public and medical community about the disease, and promotes and conducts research related to endometriosis.
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Epilepsy Foundation
(updated on 11/24/2009)
The Epilepsy Foundation will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through services, education, advocacy and research.
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Erfocentrum
(updated on 11/24/2009)
Through providing objective, reliable information the Erfocentrum supports people in making informed choices regarding their own health and the health of their children. The Erfocentrum also supports people in forming their own personal opinions about social and ethical aspects of genetics and biomedical issues.
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Erythropoietic Protoporphyria Research & Education Fund
(updated on 04/26/2010)
The mission of EPPREF is to provide information on EPP to patients, their families and to physicians.
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Esophageal Cancer Awareness Association, Inc.
(updated on 11/24/2009)
The mission of the Esophageal Cancer Awareness Assn Inc. -- founded by patients, suyrvivors and caregivers -- is to promote the quality of life for those affected by this disease.
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Eunice Kennedy Shriver Center
(updated on 11/24/2009)
Dedicated to improving the lives of individuals with developmental disabilities and their families, the Shriver Center promotes the understanding of neurological, cognitive and behavioral development associated with developmental disabilities, with an emphasis on mental retardation.
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Eurordis - Rare Diseases Europe
(updated on 11/24/2009)
The European Organisation for Rare Diseases, EURORDIS, is a patient-driven alliance of patient organisations and individuals active in the field of rare diseases. EURORDISﾒ mission is: - To build a strong pan-European community of patient organisations and people living with rare diseases; - To be their voice at the European level; and ﾖ directly or indirectly ﾖ to fight against the impact of rare diseases on their lives.
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Evanosky Foundation
(updated on 12/02/2009)
Our mission is to fund MLD research and develop programs to enhance the overall quality of life for families affected by MLD or other leukodystrophies.
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everyminute.org
(updated on 05/03/2010)
everyminute.org is a grassroots campaign uniting advocates, mental health professionals and organizations into a single coalition creating a public forum advancing the need and benefit of increased mental health research.