Sharon Terry Publications

1. Uitto J, Boyd C, Lebwohl M, Rosenbloom J, and Terry S: Report on the International Centennial Meeting on Pseudoxanthoma Elasticum. Journal of Investigative Dermatology. 110:840-842. May, 1998. PMID: 9579557
http://www.nature.com.proxygw.wrlc.org/jid/journal/v110/n5/full/5600075a...
 

2. O. Le Saux, Z. Urban, H. H. H. Goring, K. Csiszar, F. M. Pope, A. Richard, I. Pasquali-Ronchetti, S. Terry, L. G. Bercovitch, M. G. Lebwohl, M. H. Breuning, P. Van Der Berg, L. Kornet, N. Doggett, J. Ott, P. T. V., M. Paulus, A. A. B. Bergen and C. D. Boyd: Pseudoxanthoma Elasticum Maps To An 820 Kb Region Of The P13.1 Region Of Chromosome 16. Genomics 62, p.1 –10, 1999. PMID: 10585762
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=10585762
 

3. Le Saux O, Urban Z, Tschuch C, Csiszar K, Bacchelli B, Quaglino D, Pasquali-Ronchetti I, Pope FM, Richards A, Terry S, Bercovitch L, de Paepe A, Boyd CD. Mutations in a gene encoding an ABC transporter cause pseudoxanthoma elasticum. Nat Genet. 2000 Jun;25(2):223-7. PMID: 10835642
http://www.nature.com.proxygw.wrlc.org/ng/journal/v25/n2/full/ng0600_223...
 

4. Bergen AA, Plomb AS, Schuurman EJ, Terry SF, Breuning M, Dauwerse H, Swart J, Kool M, van Soest, S, Baas F, ten Brink JB, de Jong PT. Mutations in ABCC6 cause pseudoxanthoma elasticum. Nat Genet. 2000 Jun; 25(2): 228-31. PMID: 10835643
http://www.nature.com.proxygw.wrlc.org/ng/journal/v25/n2/full/ng0600_228...
 

5. Terry SF, Davidson ME. Meeting the Needs of Affected Individuals in the New Genetics Age. Exceptional Parent, December 2000.
 

6. Terry SF, Davidson ME. Empowering the Public to be Informed Consumers of Genetic Technologies and Services. Community Genetics, December 2000. PMID: 11831266
http://proquest.umi.com.proxygw.wrlc.org/pqdweb?index=0&did=682994321&Sr...
 

7. Terry SF, Bercovitch L, Boyd C (June 2001) Pseudoxanthoma elasticum (PXE). In: GeneClinics: Clinical Genetic Information Resource [database online]. Copyright, University of Washington, Seattle. Available at http://www.geneclinics.org.
 

8. Terry SF, Boyd C. Researching the Biology of PXE: Partnering in the Process. American Journal of Medical Genetics, Volume 106, Issue 3, 2001. pp. 177-184. PMID: 11778977
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=11778977%5Buid%5D
 

9. Gheduzzi D, Taparelli F, Quaglino D Jr, Di Rico C, Bercovitch L, Terry SF, Singer DB, Pasquali-Ronchetti I. The placenta in pseudoxanthoma elasticum: clinical, structural and immunochemical study. Placenta. 2001 Jul;22(6):580-90. PMID: 11440547
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=11440547
 

10. Terry P, Terry SF. Consumer Perspective on Informed Consent and third-party issues. J Contin Educ Health Prof. 2001 Fall;21(4):256-64. PMID: 11803770
http://www.ncbi.nlm.nih.gov/pubmed?term=11803770
 

11. Le Saux O, Beck K, Sachsinger C, Silvestri C, Treiber C, Goring HH, Johnson EW, De Paepe A, Pope FM, Pasquali-Ronchetti I, Bercovitch L, Terry SF, Boyd CD. A spectrum of abcc6 mutations is responsible for pseudoxanthoma elasticum. Am J Hum Genet. 2001 Oct;69(4):749-64. PMID: 11536079
http://www.sciencedirect.com.proxygw.wrlc.org/science?_ob=ArticleURL&_ud...
 

12. Beskow LM, Burke W, Merz JF, Barr PA, Terry SF, Penchaszadeh VB, Gostin LO, Gwinn M, Khoury MJ. Informed consent for population-based research involving genetics. JAMA. 2001 Nov 14;286(18):2315-21. PMID: 11710898
http://jama.ama-assn.org.proxygw.wrlc.org/content/286/18/2315.long
 

13. "Advocacy Groups and the New Genetics", co-authored with Alan Stockdale, in The Double-Edged Helix: Social Implications for Genetics in a Diverse Society, published by Johns Hopkins University Press, 2002.
 

14. Rothenberg KH, Terry SF. Human genetics. Before it's too late--addressing fear of genetic information. Science. 2002 Jul 12;297(5579):196-7. PMID: 12114610
http://www.sciencemag.org.proxygw.wrlc.org/content/297/5579/196.long
 

15. Terry SF. Pharmacogenetic challenges. Health Aff (Millwood). 2002 Sep-Oct;21(5):307; discussion 307-8. PMID: 12224905
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=12224905
 

16. Le Saux O, Beck K, Sachsinger C, Treiber C, Goring HH, Curry K, Johnson EW, Bercovitch L, Marais AS, Terry SF, Viljoen DL, Boyd CD. Evidence for a founder effect for pseudoxanthoma elasticum in the Afrikaner population of South Africa. Hum Genet. 2002 Oct;111(4-5):331-8. PMID: 12384774
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=12384774
 

17. Bercovitch L, Schepps B, Koelliker S, Magro C, Terry SF, Lebwohl M. Mammographic findings in pseudoxanthoma elasticum. J Am Acad Dermatol. 2003 Mar;48(3):359-66. PMID: 12637915
http://www.mdconsult.com.proxygw.wrlc.org/das/article/body/238570320-2/j...
 

18. Uhlmann WR, Bennett R, Botkin JR, Botstein D, Boughman JA, Chakravarti A, Clayton EW, Kahn J, Koenig B, Murray TH, Olson MV, Rowley J, Terry S, Valle D. Planning the genome institute's future. Science. 2003 Mar 7;299(5612):1515. PMID: 12624247
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=12624247
 

19. Collins FS, Green ED, Guttmacher AE, Guyer MS; A vision for the future of genomics research. Nature. 2003 Apr 24;422(6934):835-47. (Consortium Author). PMID: 12695777
http://www.nature.com.proxygw.wrlc.org/nature/journal/v422/n6934/full/na...
 

20. Lin AE, Terry SF, Lerner B, Anderson R, Irons M. Participation by clinical geneticists in genetic advocacy groups. Am J Med Genet. 2003 May 15;119A(1):89-92. PMID: 12707968
http://onlinelibrary.wiley.com.proxygw.wrlc.org/doi/10.1002/ajmg.a.20027...
 

21. Terry SF. Learning genetics. Health Aff (Millwood). 2003 Sep-Oct;22(5):166-71. PMID: 14515892
http://content.healthaffairs.org.proxygw.wrlc.org/content/22/5/166.long
 

22. Terry SF, Burke, W. Banning Pens and Pads Misses the Main Point. Journal of Bioethics. 2003 October 3:3 (63-65). PMID: 14594500
http://web.ebscohost.com.proxygw.wrlc.org/ehost/pdfviewer/pdfviewer?sid=...
 

23. Bercovitch L, Robinson-Bostom L, Terry S, Pasquali-Ronchetti I, Harrist T. Re: yellowish papules on flexural areas in a child. Pediatr Dermatol. 2003 Nov-Dec;20(6):543-5; author reply 545. PMID: 14651582
http://onlinelibrary.wiley.com.proxygw.wrlc.org/doi/10.1111/j.1525-1470....
 

24. Gheduzzi D, Sammarco R, Quaglino D, Bercovitch L, Terry S, Taylor W, Ronchetti IP. Excutaneous ultrastructural alternations in pseudoxanthoma elasticum. Ultrastruct Pathol. 2003 Nov-Dec;27(6):375-84. PMID: 14660276
http://www.ncbi.nlm.nih.gov/pubmed/14660276
 

25. “Consumer Perspectives on Life Insurance,” co-authored with Wendy Uhlmann in Rothstein, M.A.,ed. (2004). Genetics and Life Insurance: Medical Underwriting and Social Policy. Cambridge, Massachusetts. The MIT Press.
 

26. The International HapMap Consortium (Terry, SF, member, Populations group). Integrating ethics and science in the International HapMap Project. Nat Rev Genet. 2004 Jun;5(6):467-75. PMID: 15153999
http://www.nature.com.proxygw.wrlc.org/nrg/journal/v5/n6/full/nrg1351.html
 

27. Beskow LM, Botkin JR, Daly M, Juengst ET, Lehmann LS, Merz JF, Pentz R, Press NA, Ross LF, Sugarman J, Susswein LR, Terry SF, Austin MA, Burke W. Ethical issues in identifying and recruiting participants for familial genetic research. Am J Med Genet. 2004 Sep 28. PMID: 15455364
http://onlinelibrary.wiley.com.proxygw.wrlc.org/doi/10.1002/ajmg.a.30234...
 

28. Bercovitch L, LeRoux T, Terry S, Weinstock MA. Pregnancy and obstetrical outcomes in pseudoxanthoma elasticum. Br J Dermatol. 2004 Nov;151(5):1011-8. PMID: 15541079
http://onlinelibrary.wiley.com.proxygw.wrlc.org/doi/10.1111/j.1365-2133....
 

29. Bercovitch RS, Januario JA, Terry SF, Boekelheide K, Podis AD, Dupuy DE, Bercovitch LG Testicular microlithiasis in association with pseudoxanthoma elasticum. Radiology. 2005 Nov; 237(2):550-4. PMID: 16244264
http://radiology.rsna.org.proxygw.wrlc.org/content/237/2/550.long
 

30. Terry SF, Terry PF. A consumer perspective on forensic DNA banking. J Law Med Ethics. 2006 Summer;34(2):408-14. PMID: 16789963
http://onlinelibrary.wiley.com.proxygw.wrlc.org/doi/10.1111/j.1748-720X....
 

31. Vanakker OM, Martin L, Gheduzzi D, Leroy BP, Loeys BL, Guerci VI, Matthys D, Terry SF, Coucke PJ, Pasquali-Ronchetti I, De Paepe A. Pseudoxanthoma Elasticum-Like Phenotype with Cutis Laxa and Multiple Coagulation Factor Deficiency Represents a Separate Genetic Entity. J Invest Dermatol. 2006 Nov 16. PMID: 17110937
http://www.nature.com.proxygw.wrlc.org/jid/journal/v127/n3/full/5700610a...
 

32. Terry SF, Terry PF, Rauen K, Uitto J, Bercovitch L. Advocacy Organizations as Research Organizations: the PXE International example. Nature Reviews Genetics. 2007 Feb; Vol. 8, No. 2. PMID: 17230202
http://www.nature.com.proxygw.wrlc.org/nrg/journal/v8/n2/full/nrg1991.html
 

33. Shi Y, Terry SF, Terry PF, Bercovitch LG, Gerard GF. Development of a rapid, reliable genetic test for pseudoxanthoma elasticum. J Mol Diagn. 2007 Feb;9(1):105-12. PMID: 17251343
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pmc/articles/PMC1867419/?to...
 

34. Herrick, E.K., Fogel, C.E., Christensen, K., Terry, S.F. & McInerney, J.D. Providers’ Knowledge of Genetics: A Survey of 5,915 Individuals and Families with Genetic Conditions. Genet Med. 2007 May;9(5):259-67. PMID: 17505202
http://ovidsp.tx.ovid.com.proxygw.wrlc.org/sp-3.3.1a/ovidweb.cgi?T=JS&PA...
 

35. Pfendner EG, Vanakker O, Terry SF, Vourthis S, McAndrew PE, McClain MR, Fratta S, Marais AS, Hariri S, Coucke PJ, Ramsay M, Viljoen D, Terry PF, De Paepe A, Uitto J, Bercovitch LG. Mutation Detection in the ABCC6 Gene and Genotype-Phenotype Analysis in a Large International Case Series Affected by Pseudoxanthoma Elasticum. J Med Genet. 2007 Jul 6. PMID: 17617515
http://jmg.bmj.com.proxygw.wrlc.org/content/44/10/621.long
 

36. Vanakker OM, Leroy BP, Coucke P, Bercovitch LG, Uitto J, Viljoen D, Terry SF, Van Acker P, Matthys D, Loeys B, De Paepe A. Novel clinico-molecular insights in pseudoxanthoma elasticum provide an efficient molecular screening method and a comprehensive diagnostic flowchart. Hum Mutat. 2008 Jan;29(1):205. PMID: 18157818
http://onlinelibrary.wiley.com.proxygw.wrlc.org/doi/10.1002/humu.9514/pdf
 

37. Wolf SM, Lawrenz FP, Nelson CA, Kahn JP, Cho MK, Clayton EW, Fletcher JG, Georgieff MK, Hammerschmidt D, Hudson K, Illes J, Kapur V, Keane MA, Koenig BA, Leroy BS, McFarland EG, Paradise J, Parker LS, Terry SF, Van Ness B, Wilfond BS. Managing incidental findings in human subjects research: analysis and recommendations. J Law Med Ethics. 2008 Summer;36(2):219-48, 211. PMID: 18547191
http://onlinelibrary.wiley.com.proxygw.wrlc.org/doi/10.1111/j.1748-720X....
 

38. Terry, SF. Genetic testing. Genet Test. 2008 Jun;12(2):175-6. PMID: 18554161
http://www.ncbi.nlm.nih.gov/pubmed/18554161
 

39. Petruccio C, Mills Shaw KR, Boughman J, Fernandez C, Harlow I, Kruesi M, Kyler P, Lloyd-Puryear MA, O'Leary J, Skillman A, Terry SF, McKain F. Healthy choices through family history: a community approach to family history awareness. Community Genet. 2008;11(6):343-51. PMID: 18690002
http://proquest.umi.com.proxygw.wrlc.org/pqdweb?index=0&did=1528748241&S...
 

40. Ramsay M, Greenberg T, Lombard Z, Labrum R, Lubbe S, Aron S, Marais AS, Terry S, Bercovitch L, Viljoen D. Spectrum of genetic variation at the ABCC6 locus in South Africans: Pseudoxanthoma elasticum patients and healthy individuals. J Dermatol Sci. 2009 Mar 30. PMID: 19339160
http://www.ncbi.nlm.nih.gov/pubmed/19339160
 

41. Terry, SF. What do leaders of disease-specific advocacy organizations know about pharmacogenomics and biomarkers, anyway? Future Medicine. 2009;6(2): 171-181.
 

42. Zonno KD, Terry SF. Registry of genetic tests: a critical stepping stone to improving the genetic testing system. Genet Test Mol Biomarkers. 2009 Apr;13(2):153-4. PMID: 19371210
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2830755/?tool=pubmed
 

43. Haga SB, Terry SF. Ensuring the Safe Use of genomic Medicine in Children. Clin Pediatr (Phila). 2009 May 15. PMID: 19448129
http://www.ncbi.nlm.nih.gov/pubmed?term=19448129
 

44. Khoury MJ, Feero WG, Reyes M, Citrin T, Freedman A, Leonard D, Burke W, Coates R, Croyle R, Edwards K, Kardia S, McBride C, Manolio T, Randhawa G, Rasooly R, St Pierre J, Terry S; GAPPNet Planning Group. The Genomic Applications in Practice and Prevention Network. Genet Med. 2009 May 22. PMID: 19471162
http://journals.lww.com/geneticsinmedicine/Fulltext/2009/07000/The_Genom...
 

45. Ramsay M, Greenberg T, Lombard Z, Labrum R, Lubbe S, Aron S, Marais AS, Terry S, Bercovitch L, Viljoen D. Spectrum of genetic variation at the ABCC6 locus in South Africans: Pseudoxanthoma elasticum patients and healthy individuals. J Dermatol Sci. 2009 Jun;54(3):198-204.
http://www.ncbi.nlm.nih.gov/pubmed/19339160
 

46. Zonno KD, Terry SF. Transparency, openness, and genetic testing. Genet Test Mol Biomarkers. 2009 Aug;13(4):433-4. PMID: 19663599
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pmc/articles/PMC2840228/?to...
 

47. Khoury MJ, McBride CM, Schully SD, Ioannidis JP, Feero WG, Janssens AC, Gwinn M, Simons-Morton DG, Bernhardt JM, Cargill M, Chanock SJ, Church GM, Coates RJ, Collins FS, Croyle RT, Davis BR, Downing GJ, Duross A, Friedman S, Gail MH, Ginsburg GS, Green RC, Greene MH, Greenland P, Gulcher JR, Hsu A, Hudson KL, Kardia SL, Kimmel PL, Lauer MS, Miller AM, Offit K, Ransohoff DF, Roberts JS, Rasooly RS, Stefansson K, Terry SF, Teutsch SM, Trepanier A, Wanke KL, Witte JS, Xu J The Scientific Foundation for personal genomics: recommendations from a National Institutes of Health-Centers for Disease Control and Prevention multidisciplinary workshop. Genet Med. 2009 Aug;11(8):559-67. PMID: 19617843
http://journals.lww.com/geneticsinmedicine/Fulltext/2009/08000/The_Scien...
 

48. Zonno KD, Terry PF, Terry SF. A measure of truth in genetic testing. Genet Test Mol Biomarkers. 2009 Jun;13(3):285-6. PMID: 19473075
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=19473075
 

49. Haga SB, Terry SF. Ensuring the safe use of genomic medicine in children. Clin Pediatr (Phila). 2009 Sep;48(7):703-8. Epub 2009 May 15. PMID: 19448129
http://cpj.sagepub.com.proxygw.wrlc.org/content/48/7/703.long
 

50. Zonno KD, Terry SF. Collaboration: the foundation for success in rare disease genetic test development. Genet Test Mol Biomarkers. 2009 Oct;13(5):553-4. PMID: 19814612
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=19814612
 

51. Dressler LG, Terry SF. How will GINA influence participation in pharmacogenomics research and clinical testing? Clin Pharmacol Ther. 2009 Nov;86(5):472-5. PMID: 19844223
http://www.nature.com.proxygw.wrlc.org/clpt/journal/v86/n5/full/clpt2009...
 

52. Terry SF. Genetic information nondiscrimination act insurance protections issued. Genet Test Mol Biomarkers. 2009 Dec;13(6):709-10. PMID: 20001579
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=20001579
 

53. Plomp AS, Bergen AA, Florijn RJ, Terry SF, Toonstra J, van Dijk MR, de Jong PT. Pseudoxanthoma elasticum: Wide phenotypic variation in homozygotes and no signs in heterozygotes for the c.3775delT mutation in ABCC6. Genet Med. 2009 Dec;11(12):852-8. PMID: 19904211
http://ovidsp.tx.ovid.com.proxygw.wrlc.org/sp-3.3.1a/ovidweb.cgi?T=JS&PA...
 

54. Calonge N, Green NS, Rinaldo P, Lloyd-Puryear M, Dougherty D, Boyle C, Watson M, Trotter T, Terry SF, Howell RR; Committee report: Method for evaluating conditions nominated for population-based screening of newborns and children. Genet Med. 2010 Feb 11. PMID: 20154628
http://ovidsp.tx.ovid.com.proxygw.wrlc.org/sp-3.3.1a/ovidweb.cgi?T=JS&PA...
 

55. Terry SF. Genetic testing and biomarkers in the new decade. Genet Test Mol Biomarkers. 2010 Feb;14(1):1-2. PMID: 20143909
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=20143909
 

56. Terry SF, Austin C, Inglese J, Meeker D, Terry P. Assay, preclinical, and clinical brick walls and opportunities for system change through GRANDRx. Assay Drug Dev Technol. 2010 Apr;8(2):128-34. PMID: 20307201
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=20307201
 

57. Terry SF. Standards for personalized medicine. Genet Test Mol Biomarkers. 2010 Apr;14(2):155-6. PMID: 20384455
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=20384455
 

58. Terry SF. Accelerate medical breakthroughs by ending disease earmarks. Nat Rev Genet. 2010 May;11(5):310. PMID: 20414986
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=20414986
 

59. Bialick, J., Horn, E.J., Terry, S.F., Landscape analysis of registries and biobanks – a tool for disease advocacy organizations to enhance translational research systems. Biopreservation and Biobanking, 8(2): 115-17, June, 2010.
 

60. Terry SF. FDA and CLIA oversight of advanced diagnostics and biomarker tests. Genet Test Mol Biomarkers. 2010 Jun;14(3):285-7. PubMed PMID: 20578940
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=20578940
 

61. Ritsick J, Terry SF. Not your grandfather's genetic testing oversight. Genet Test Mol Biomarkers. 2010 Aug;14(4):439. PubMed PMID: 20722465
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=20722465
 

62. Gitlin JM, Fischbeck K, Crawford TO, Cwik V, Fleischman A, Gonye K, Heine D, Hobby K, Kaufmann P, Keiles S, MacKenzie A, Musci T, Prior T, Lloyd-Puryear M, Sugarman EA, Terry SF, Urv T, Wang C, Watson M, Yaron Y, Frosst P, Howell RR. Carrier testing for spinal muscular atrophy. Genet Med. 2010 Oct;12(10):621-2. PMID: 20808230
http://ovidsp.tx.ovid.com.proxygw.wrlc.org/sp-3.3.1a/ovidweb.cgi?T=JS&PA...
 

63. Krokosky A, Terry SF. International standard cytogenomic array consortium. Genet Test Mol Biomarkers. 2010 Oct;14(5):585. PubMed PMID: 20958093
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=20958093
 

64. Terry SF, Krokosky A. Rare conditions: where do primary care and genetic diseases intersect? JAAPA. 2010 Nov;23(11):63-4. PMID: 21086896
http://proquest.umi.com.proxygw.wrlc.org/pqdweb?index=0&did=2196781521&S...
 

65. Field A, Krokosky A, Terry SF. Direct-to-consumer marketing of genetic tests: access does not reflect clinical utility. Genet Test Mol Biomarkers. 2010 Dec;14(6):731-2. PMID: 21158678
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=21158678
 

66. Field A, Krokosky A, Terry SF. Answering the hard questions: the Genetic Testing Registry and its request for information. Genet Test Mol Biomarkers. 2011 Jan-Feb;15(1-2):1-2. PMID: 21275651
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=21275651
 

67. Terry SF, Terry PF. Power to the people: participant ownership of clinical trial data. Sci Transl Med. 2011 Feb 9;3(69):69cm3. PMID: 21307299
http://stm.sciencemag.org.proxygw.wrlc.org/content/3/69/69cm3.full
 

68. Baxter K, Field A, Terry SF. "Insufficient Evidence" Isn't Sufficient Anymore. Genet Test Mol Biomarkers. 2011 Mar;15(3):115-6. PMID: 21352088
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=21352088
 

69. Bercovitch L, Martin L, Chassaing N, Hefferon TW, Bessis D, Vanakker O, Terry SF. Acquired pseudoxanthoma elasticum presenting after liver transplantation. J Am Acad Dermatol. 2011 Mar 12. PMID: 21397982
http://www.sciencedirect.com.proxygw.wrlc.org/science?_ob=ArticleURL&_ud...
 

70. Terry, SF, Horn, EJ, Scott, J, and Terry, PF. Genetic Alliance Registry and BioBank: a novel disease advocacy-driven research solution. Personalized Medicine. 8(2):207-213. March, 2011.
 

71. Field A, Baxter K, Terry SF. From bench to practice to population health impact: barriers to realizing the public health and clinical promise of basic scientific discovery. Genet Test Mol Biomarkers. 2011 Apr;15(4):191-2. PMID: 21428744
http://www.ncbi.nlm.nih.gov.proxygw.wrlc.org/pubmed?term=21428744

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