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Advocates List

This email list is targeted for leaders of disease-specific organizations and their active members. Messages distributed through this list include information about events of interest, relevant legislative efforts, and weekly tips.

Announcements

Periodically, Genetic Alliance will alert you to important action items, announcements, and deadlines, including Genetic Alliance-specific material as well as information from the genetics, health, and advocacy communities. Some weeks there will be no emails; other weeks one or more might be sent to the list.

Newborn Screening Newsletter

This quarterly newsletter provides updates on the advancement of Genetic Alliance newborn screening initiatives, current newborn screening news, and new opportunities to engage in newborn screening dialogues on a community, state, and national level.

Registry and Biorepository Bulletin

Genetic Alliance BioBank sends a monthly update to keep you informed of developments in the field of registries and biorepositories. This newsletter highlights relevant funding announcements, training opportunities, scientific meetings, and recent updates from the literature.

Weekly Bulletin

This weekly update features news about upcoming events, spotlights organizations, and highlights legislation before Congress. Email bulletin@geneticalliance.org to submit your event to the Weekly Bulletin.

Discussion lists:

BioBank Discussion List

This email list has been created to discuss issues surrounding registries and biorepositories, including weekly tips developed for advocates creating or cultivating a registry or biobank.

Community Forum Discussion

Being a part of the Genetic Alliance network gives you access to valuable online meeting spaces that provide an opportunity to discuss as a virtual community.