Genetic Alliance Resources and Services
Genetic Alliance is proud to provide a range of resources and services that benefit both individuals and organizations. We welcome and encourage your involvement: listen to webinars, create and edit entries in WikiGenetics and WikiAdvocacy, participate in the Advocates Partnership Program, add your organization to Disease InfoSearch, and more.
Stay informed
- Announcements
- Periodically, Genetic Alliance will alert you to important action items, announcements, and deadlines, including Genetic Alliance-specific material as well as information from the genetics, health, and advocacy communities. Some weeks there will be no emails; other weeks one or more might be sent to the list. This listserv includes the Advocacy in Genetics newsletter, which is distributed a few times a year with updates on Genetic Alliance activities.
- Newborn Screening Newsletter
- This quarterly newsletter provides updates on the advancement of Genetic Alliance newborn screening initiatives, current newborn screening news, and new opportunities to engage in newborn screening dialogues on a community, state, and national level.
- Policy Bulletin
- Genetic Alliance participates in international, federal, and regional policy news and utilizes our rich network of thousands of organizations to provide you with the most up-to-date information on genetics and health public policy. The Weekly Policy Bulletin puts legislative updates, Congressional and regulatory agency activity, newly released publications and reports, and opportunities for engagement in the policymaking process at your fingertips.
- Registry and Biorepository Bulletin
- Genetic Alliance BioBank sends a monthly update to keep you informed of developments in the field of registries and biorepositories. This newsletter highlights relevant funding announcements, training opportunities, scientific meetings, and recent updates from the literature.
- Weekly Bulletin
- This weekly update to our Announcements listserv features news about upcoming events, spotlights organizations, and highlights legislation before Congress. Email bulletin@geneticalliance.org to submit your event to the Weekly Bulletin.
Genetic Alliance improves health through the authentic engagement of communities and individuals. In this, our 25th year, we celebrate innovation on our journey toward novel partnerships, connected consumers and smart services.
