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"Does It Run In the Family?" Toolkit

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Genetic Alliance partnered with a diverse group of communities to create tailored family health history tools. We believe that accessible tools produced by the community, for the community, will promote conversations about health within the family and translate knowledge of family health history into healthy choices. Read our complete list of goals and objectives.

The Customizable Online Toolkit was available for use by communities and families to create tailored versions of the Does It Run In the Family? toolkit. 

The first round of community partners adapted the Does It Run In the Family? toolkit, disseminated it to community members, and evaluated whether the tool encourages healthy decision-making and collection of family health history. The second round of partners also customized and disseminated booklets, with an emphasis on integrating family health history into ongoing programs and initiatives.

Read the project monograph! “Collaboration Across Communities: How Do You Make Research Community-Specific and Universally-Relevant?” details the diverse approaches employed by community partners as well as overall strategies and lessons learned.

Does It Run In the Family?Cover of Family Health History Booklet in English Cover of Family Health History Booklet #2 in English

The Does It Run In the Family? template was created using feedback from all project partners and the National Advisory Committee. Click on the images to the left to download A Guide to Family Health History and A Guide to Genetics and Health.                                                                                For more information visit

Supplemental Materials

Communication is an important part of family health history. We’ve created optional supplemental materials that may help individuals talk with their family and healthcare provider.

arrow icon Healthcare Provider Card

arrow icon Questionnaire

Customized Booklets

Alpha-1 FoundationAlpha-1 Foundation [book 1] [book 2]
Angioma Alliance [book 1] [book 2]
Brookdale University Hospital and Medical Center [book 1] [book 2]
Comprehensive Community Health Centers Inc. [book 1] [book 2]
Comprehensive Community Health Centers Inc. (Spanish) [book 1] [book 2]
Beamont Cancer Genetic Program/Covenant CHC [book 1] [book 2]
Daily Planet [book 1]
Duke LIVE FOR LIFE/Institute for Genome Sciences & Policy [book 1] [book 2]
Ferre Institute [book 1] [book 2]
Genetic Alliance [book 1] [book 2]
 Alianza Genética (Spanish) [book 1] [book 2]
The Genomedical Connection [book 1] [book 2]
The Heredity Project [book 1] [book 2]
Institute for Cultural Partnerships [book 1] [book 2]
Intermountain Healthcare [book 1] [book 2]
Iona College [book 1] [book 2]
Lana'i Community Health Center [book 1] [book 2]
Lana'i Community Health Center (Tagalog) [book 1] [book 2]
Madison County Community Health Center [book 1] [book 2]
Madison County Community Health Center (Spanish) [book 1] [book 2]
National Council of La Raza [book 1] [book 2]
Consejo Nacional de la Raza (Spanish) [book 1] [book 2]
National Psoriasis Foundation [book 1] [book 2]
Office of Justice and Peace/Health Wagon [book 1] [book 2]
Progreso Latino [book 1] [book 2]
Seattle Indian Health Board [book 1] [book 2]
Siouxland Community Health Center [book 1] [book 2]
Siouxland Community Health Center (Spanish) [book 1] [book 2]
Southern Missouri Telehealth Genetics [book 1] [book 2]
University of Oklahoma College of Medicine [book 1] [book 2]
West Side Community Health Services [book 1] [book 2]

Additional Partners:

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This project was supported (in part) by cooperative agreement U33MC06836 with the Genetic Services Branch of the Maternal and Child Health Bureau, Health Resources and Services Administration (HRSA). The content of this webpage is solely the responsibility of Genetic Alliance and does not necessarily represent the official views of HRSA.

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26400 Woodfield Road #189, Damascus MD 20872 | Tel: 202.966.5557 | EIN 52-1571905

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