Publications
Genetic Alliance publications are aimed at emerging and experienced advocacy leaders, researchers, healthcare providers, and policymakers. All of our publications are available for free downloading and distribution, as long as Genetic Alliance is credited as the author and the content is not modified in any way. To order copies of any publication, return this form to Amelia Chappelle at achappelle@geneticalliance.org.
Genetic Alliance Monographs
Genetic Alliance has three monographs to date: "Genomics, Cancer Care & Advocacy", "Genetic Testing Stories", and "Eyes on the Prize: Truth Telling about Genetic Testing". This series provides an in-depth look at specific topics in the worlds of genetics and advocacy, from personal chronicles to high-level discussion and analysis.
Weekly Bulletin
Genetic Alliance sends a weekly update to our Announcements listserv to keep readers up-to-date on events and activities in the genetics community. All members of the genetics community are invited to submit events, meetings and professional announcements for inclusion in the Genetic Alliance Weekly Bulletin. All submissions should be broadly applicable to the genetics and health community, rather than disease-specific. Due to the activity level of the 10,000 organizations in our network, submissions will be reviewed based on order of arrival, relevance to the genetics community, application to health systems, and the inclusion of a website link. Email bulletin@geneticalliance.org to submit your event to the Weekly Bulletin. To subscribe to the Weekly Bulletin, send an email to info@geneticalliance.org.
Advocacy in Genetics
The Advocacy in Genetics e-newsletter highlighting updates and events from Genetic Alliance. It regularly features our conferences, new tools and resources, staffing changes, meeting presentations, webinars, and more.
Policy Bulletin
Genetic Alliance participates in international, federal, and regional policy news and utilizes our rich network of thousands of organizations to provide you with the most up-to-date information on genetics and health public policy. The Weekly Policy Bulletin puts legislative updates, Congressional and regulatory agency activity, newly released publications and reports, and opportunities for engagement in the policymaking process at your fingertips. To subscribe, simply email policy@geneticalliance.org.
Understanding Genetics: A Guide for Patients and Health Professionals
This manual covers basic genetics concepts complemented with consumer-friendly information about diagnoses of genetic conditions.
How-to Guides
Genetic Alliance offers several practical guides that provide valuable tips for succeeding in genetic advocacy work.
Making Sense of Your Genes: A Guide to Genetic Counseling
This booklet provides a consumer-friendly introduction to genetic counseling and its application. The guide includes information on preparing for a genetic counseling session and the different specialties in the field.