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Community Engaged Network for All

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CENA announces that two of the nine disease advocacy organizations in the network launched research registries on September 15, 2014. Spotlight on the National Gaucher Foundation and Joubert Syndrome and Related Disorders Foundation. See press release.

What is the Community Engaged Network for All (CENA)?

What conditions are covered in CENA?

What organizations are involved in CENA?

What CENA means for individuals, families and communities?

What about individual preferences with regard to health information sharing?

What CENA means for Researchers?

How other organizations, institutions and groups can participate in CENA?

Information about the nine organizations involved in CENA.

Follow the @CENAProject on Twitter for more information and announcements.

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