Give people a path to participate in biomedical research, and they will accelerate solutions. The BioTrust enterprise offers tools and platforms to empower citizens to contribute data, samples, and ideas. By engaging individuals, disease advocacy organizations, providers, and researchers and making innovative tools such as the Platform for Engaging Everyone Responsibly (PEER) available to the community, Genetic Alliance catalyzes translational and clinical research and accelerates solutions for human health.
BioTrust engages in a number of important projects designed to transform the translational science space: Community Engaged Network for All (CENA), Patient Focused Drug Development (PFDD), Free the Data, and Registries for ALL (Reg4All). Our work is overseen by the Genetic Alliance Ethics Team and the Institutional Review Board.
Where do you go to get credible and current information on genetic conditions? Look no further than Disease InfoSearch, which provides comprehensive, up-to-date information on 10,000 diseases and their subtypes. Looking to share information, not just get it? Registries for All (Reg4All) gives you the tools to share your clinical data and determine your own sharing, privacy, and data access settings. Similarly, Free the Data allows you to share your genetic variation while protecting your privacy according to your preferences. Finally, let clinical trials come to you with TrialsFinder. And don't forget, your opinion counts! Please tell the FDA what you think about the risks and benefits of drug development.
It is critical to understand where you are on the road to interventions and therapies. Navigating the Ecosystem of Translational Science (NETS) gives you a map, and GaugeRx helps you understand where you are on the map. Then put your whole community on the map with Genetic Alliance Registry and BioBank (GARB)! GARB provides complete end-to-end solutions for registries, biobanking, and associated studies.
BioTrust offers you the opportunity to pose questions that will build a cohort or generate a hypothesis. RecruitSource is a powerful search engine that helps you connect with the right participants for your research study. Navigating the Ecosystem of Translational Science (NETS) and GaugeRx help you determine where you are on the complex road to therapies and interventions.