Press Release Room
Genetic Alliance is called on periodically to testify before congressional committees, advisory committees and other deliberative bodies. In addition, Genetic Alliance actively leverages the voices of its network in formal communication with government officials and agencies. Here are some of the statements presented:
New Educational Resource Prepares Clinicians for Genomic Medicine [download PDF], May 22, 2013
Federal Advisory Committee Recommends Pompe Disease for Newborn Screening [download PDF], May 17, 2013
Genetic Alliance Announces Registries for All [download PDF], April 5, 2013
One Stop Shopping for All Diseases: Genetic Alliance Launches Disease InfoSearch [download PDF], March 19, 2013
Genetic Alliance Funds Innovation in Newborn Screening [download PDF], March 7, 2013
Genetic Alliance and Inspire Partner on Rare and Genetic Disease Support Community, February 28, 2013
Registries for All Diseases wins $300k to create crowdsourced cross-disease registry, December 12, 2012
Genetic Alliance Funds Innovation in Newborn Screening [download PDF], September 19, 2012
Genetic Alliance Celebrates Great Day for Translational Science [download PDF], September 14, 2012
Happy Birthday to Baby’s First Test! [download PDF], September 12, 2012
Genetic Alliance Applauds Supreme Court Decision on Affordable Care Act,
June 28, 2012
2011 Press Release Archive
2012 Baby's First Test Challenge Awards - Request for Proposals [download PDF],
October 6, 2011
2012 Consumer Task Force on Newborn Screening Request for Applications [download PDF],
September 28, 2011
Genomics Education Program for Physicians Launches at El Camino Hospital [download PDF],
September 26, 2011
Health and Human Services Secretary Adopts New Recommendation on Newborn Screening [download PDF], September 22, 2011
March of Dimes and Partners Begin Testing New Electronic Tool [download PDF],
September 21, 2011
Genetic Alliance Launches Vital Newborn Screening Resource [download PDF],
September 7, 2011
Does It Run In the Family? Toolkit Will Soon Be Available at Federal Health Centers Nationwide [download PDF], June 2, 2011
Founder’s Service Award [download PDF], May 25, 2011
BabysFirstTest: The Newborn Screening Clearinghouse Funds Novel Initiatives [download PDF],
April 5, 2011
Genetic Alliance Launches Collaboration with Exceptional Parent Magazine [download PDF],
April 5, 2011
Genetic Alliance Celebrates the Art of Reporting Award [download PDF], March 10, 2011
Award-Winning Vendor Selected to Develop BabysFirstTest.org
[download PDF], March 2, 2011
Genetic Alliance Funds Innovation in Newborn Screening through Challenge Awards
[download PDF], January 27, 2011
Genetic Alliance Celebrates the Art of Listening [download PDF], February 24, 2011
2010 Press Release Archive
Genetic Alliance Leads Integration of Family Health History into Community Health Centers
[download PDF], November 3, 2010
New Educational Resources on Law Against Genetic Discrimination Now Available
[download PDF], June 3, 2010
Collection of Newborn Screening Videos Provides Unique Forum for Information Sharing
[download PDF], April 29, 2010
New Jersey Consortium of Care to Receive First Ever National Award for Novel Partnership [download PDF], April 21, 2010
Biomedical Trailblazer to Receive National Award for Advancing Health through Advocacy [download PDF], April 7, 2010
Genetic Alliance Celebrates Announcement of Genetic Tests Registry [download PDF],
March 18, 2010
Genetic Alliance President Joins Prestigious Fellow Program for Global Organization
[download PDF], March 17, 2010
The Power of the Ear and the Voice [download PDF], March 17, 2010
Position of Genetic Alliance on Breast Cancer Gene Patent Case [download PDF], January 29, 2010
Federal Advisory Committee Recommends SCID for Universal Newborn Screening
[download PDF], January 27, 2010
Future of Newborn Screening Envisioned: Proceedings Now Viewable Online [download PDF], January 7, 2010
2009 Press Release Archive
Genetic Alliance Selected as One of Washingtonian’s Great Places to Work [download PDF],
October 22, 2009
Patient and Provider Education at the Heart of New Prenatal and Early Childhood Diagnosis Program [download PDF], October 6, 2009
Pioneering HHS HRSA Grant Funds Establishment of First National Newborn Screening Clearinghouse [download PDF], September 16, 2009
Does it Run in the Family? Tool Guides Collection of Life-Saving Information [download PDF],
August 26, 2009
Genetic Alliance Welcomes Gene Early to the Council [download PDF], August 25, 2009
Newborn Screening Bloodspots: How Can We Preserve Both This National Treasure and
Patient Privacy? [download PDF], August 22, 2009
Private Access Announces Commercial Beta Release of Privacy-Enhanced Search Technology [download PDF], August 19, 2009
Genetic Alliance Celebrates the Confirmation of New NIH Director Francis S. Collins, MD, PhD [download PDF], August 7, 2009
New HHS HRSA Grant Will Fund Development of an Electronic Genetic and Family History Record for Doctors’ Offices [download PDF], July 14, 2009
Genetic Alliance Commends the Nomination of Francis S. Collins, MD, PhD, as New NIH Director [download PDF], July 8, 2009
HITSP Begins Harmonization Process for Use of Electronic Health Records in Clinical Research [download PDF], June 15, 2009
Genetic Alliance Issues Statement Applauding New NIH Therapeutics for Rare and Neglected Diseases Program [download PDF], May 20, 2009
Sharon Terry Appointed to Health IT Standards Committee [download PDF], May 11, 2009
Overhaul of Genetic and Other Advanced Diagnostics Testing Regulations Necessary for Personlized Medicine [download PDF], May 5, 2009
Genetic Alliance Unveils Senior Management Positions [download PDF], April 8, 2009
Genetic Alliance Honored with Research!America Advocacy Award [download PDF], March 20, 2009
Leaders in Health and Genetics Acknowledged by Genetic Alliance Awards [download PDF],
March 10, 2009
Reverend Dr. Susan King Accepts Genetic Alliance Council Appointment [download PDF],
March 2, 2009
ANSI Seeks Funding to Ensure that Electronic Health Records Will Support Clinical Research Activities [download PDF], February 13, 2009
The American Society of Human Genetics and Genetic Alliance to Host Live Phone Bank in Partnership with Aetna and WJLA-TV ABC7 [download PDF], January 26, 2009
2008 Press Release Archive
Genetic Alliance Strengthens Internal Leadership [download PDF], December 3, 2008
Genetic Alliance Names Sharon Kardia, PhD, as New Council Member [download PDF], December 1, 2008
New Director of Genetics and Health Policy Joins Genetic Alliance [download PDF], November 14, 2008
Genetic Alliance Issues Statement Commemorating the Life of The Honorable Paul G. Rogers [download PDF], October 14, 2008
PLOS and SPARC Release New “Voices of Open Access” Video Series [download PDF], October 14, 2008
Genetic Alliance Issues Statement on the Resignation of NIH Director Elias Zerhouni, MD [download PDF], September 26, 2008
Guide Launched to Prepare Americans for Newly Passed Health Legislation [download PDF], September 9, 2008
Private Access and Genetic Alliance Announce Strategic Partnership to Accelerate Medical Research While Protecting Privacy [download PDF], August 19, 2008
Coalition for Genetic Fairness Celebrates Passage of GINA, Honors GINA Champions [download PDF], July 23, 2008
Genetic Alliance Honors Advocate and Industry Leaders in Genetics [download PDF],
July 23, 2008
Genetic Alliance Announces ‘Family Health History’ Grant Award Recipients [download PDF], June 2, 2008
Francis Collins Announces his Departure from NGHRI [download PDF], May 28, 2008
President Bush Signs Landmark Genetic Nondiscrimination Information Act Into Law [download PDF], May 21, 2008
U.S. Congress Passes Genetic Nondiscrimination Act [download PDF], May 1, 2008
Senate Passes Historic Bill on Genetic Information Nondiscrimination [download PDF], April 23, 2008
2007 Press Release Archive
Consumer Taskforce on Newborn Screeining, September 17, 2007
Genetic Alliance Establishes the National Consumer Center for Genetics Resources and Services, September 5, 2007
Federal Agency Rejects Enhanced Oversight of Genetic Tests, Places, Cost Considerations above Public Health Concerns, August 30, 2007
Understanding Genetics: A New England Guide for Patients and Health Professionals, July 19, 2007
Amelia Chappelle joins Genetic Alliance as the Assistant Director of Genetic Resources & Services, June 14, 2007
Genetic Alliance Awarded Two Newborn Screening Grants, May 24, 2007
Sharon Terry receives Award for Patient Service at the University of North Carolina at Chapel Hill, May 19, 2007
Heather Ferguson joins Genetic Alliance as the Associate Director of Genetic Resources & Services, May 15, 2007
Genetic Alliance Launches Robust Repository Service, May 7, 2007
Genetic Alliance Introduces New Web Resource for Accessing Information on Genetic Diseases, April 30, 2007
Coalition for Genetic Fairness Applauds US House of Representatives for Passing Genetic Information Nondiscrimination Act, April 25, 2007
Coalition for Genetic Fairness Applauds House for Holding Hearing, January 30, 2007
2006 and Prior Press Release Archive
Genetic Alliance Releases “Understanding Genetics: A Guide for Patients and Health Professionals”, May 31, 2006
Genetic Alliance and Partners to Engage Communities in Family Health History Collection, May 22, 2006
Over 160 Medicines to Treat Rare Diseases Approved in Last Decade, April 20, 2006
Genetic Alliance’s Sharon Terry Receives Honorary Doctorate from Iona College, November 13, 2005
Genetic Alliance Awarded Single Gene Resources Network Cooperative Agreement, October 3, 2005
Genetic Alliance Conference Strengthens Advocates, August 18, 2004
