Genetic Discrimination

Genetic discrimination is the prejudicial treatment of people based on their genetic makeup. For example, businesses or insurance companies may seek to deny service or raise premiums based on the fact that a person has or is at an increased risk of an inherited disorder. Those who are considering genetic testing may be concerned about genetic discrimination, in the case of their genetic test results being made public in some way.

Why oppose Genetic Discrimination?

• Legislation prohibiting/limiting genetic testing ensures that all Americans are free from genetic discrimination by health insurance providers and employers.
• Insurance providers cannot use genetic information for underwriting purposes nor request patients to undergo genetic testing.
• Employers cannot discriminate against employees with respect to compensation, terms, conditions, or privileges because of genetic information.

What has Genetic Alliance done to oppose Genetic Discrimination?

• Genetic Alliance encouraged its community to write to Congress in support of The Genetic Information Non-Discrimination Act (GINA). GINA was passed, which was a victory for us all.

Genetic Alliance's Previous Statements on Genetic Discrimination

Comments on Proposed Rule, Amendments to regulations under the Genetic Information Nondiscrimination Act of 2008, RIN 3046-AB02, January 28, 2016