Genetic Alliance is called on periodically to testify before congressional committees, advisory committees and other deliberative bodies. In addition, Genetic Alliance actively leverages the voices of its network in formal communication with government officials and agencies. Here are some of the statements presented:

• Genetic Alliance supports patient access to laboratory test results – November 15, 2011
• Genetic Alliance Responds to ANPRM Regarding the Common Rule – October 26, 2011
• Genetic Alliance Argues New Proposed Rule is on HIPAA is Misguided – August 1, 2011
• Genetic Alliances Opposes Cuts to Maternal and Child Health – February 14, 2011
• Genetic Alliance sends Congress letter in support of the National Center for Advancing Translational Science – February 1, 2011

2010 Policy Statements

• Natasha Bonhomme Presents Public Comments to HIT Policy Committee Regarding Inclusion of NBS as an Area of Focus for Meaningful Use for 2013 – July 29, 2010
• Sharon Terry Testifies at Public Access to Federally-Funded Research Hearing – July 29, 2010
• Sharon Terry Testifies About Increasing Oversight of Laboratory Developed Tests (LDTs) – July 19-20, 2010
• Comments to HHS HITECH Privacy and Security Modifications – July 14, 2010
• Genetic Alliance Submits Recommendations Regarding the Retention and Use of Residual Dried Blood Spot Specimens after Newborn Screening – July 1, 2010
• Sharon Terry Offers Perspectives on the Development of Therapies and Diagnostics to Inform the Work of the FDA’s Committee for Rare Diseases – June 29-30, 2010
• Sharon Terry Testifies at June 29–30 FDA Public Hearing: Development of Articles for Rare Diseases – June 29, 2010
• Sharon Terry Provides Testimony on the Topic of Genetic Information to the National Committee on Vital and Health Statistics (NCVHS) – June 15, 2010
• Genetic Alliance Opposes Legislation to Ban Gene Patenting – April 30, 2010
• Sharon Terry Testifies at the House Committee on Science and Technology – February 24, 2010
• Genetic Alliance Asks FDA for Oversight of Advanced Diagnostic Tests and Proposed IVDMIA Guidance – February 2, 2010
• Position of Genetic Alliance on Breast Cancer Gene Patent Case – January, 2010
• Genetic Alliance Speaks at FDA Transparency Task Force Meeting – June 24, 2009
• Sharon Terry Testifies at House Appropriations Committee Hearing – March 18, 2009
• Genetic Alliance Position Statement on Earmarking– March 18, 2009
• Comments to the National Institutes of Health on Open Access Policy – March 20, 2008
• Remarks to Capitol Hill Staff at the Health IT Now! Coalition Briefing – March 14, 2008
• Comments to the Secretary’s Advisory Committee on Genetics, Health, and Society on Oversight of Genetic Tests – February 12, 2008

View policy statement archive.