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Heidi William's Story
Heidi's comments:
My family has traveled a path that I hope no else ever has to travel. We have been discriminated against based on our genes - my children have been denied health insurance based on the fact that they are carriers of a genetic condition, Alpha-1-antitrypsin deficiency.
Alpha-1-antitrypsin deficiency is a disorder that can affect the liver, the lungs, or both. Unfortunately, I was diagnosed with the lung form of this progressive condition exactly two years ago. Medical professionals know for a fact from genetic and research information that my children don
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