XXYY Project

General Organizational Information

Organization Name:

XXYY Project

Year Established:

2009

Mission Statement:

To build the capacity of parents and service providers to help males with XXYY Syndrome to lead purposeful, productive lives.

Status of organization:

Unincorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

48, XXYY

Organizational Contact Information

Prefix:

Ms.

Title:

Project Director

First Name:

Renee

Middle Initial:

Last Name:

Beauregard

Address:

PO Box 460625

Aurora, CO, 80046-0625

Phone:

+1 303 400 3456

Toll Free Number:

+1 888 503 3456

Email:

info@xxyysyndrome.org

Website Address:

http://www.xxyysyndrome.org

Resources and Services Provided

Languages spoken:

English

Information provided for:

Affected individuals

Families of affected individuals

The public

Teachers

Media

Researchers

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Rehabilitation resource referrals

Peer support

Referrals for non-medical services

Peer-to-peer counseling

Rehabilitation services

Awareness programs

Genetic information

Clinical or treatment centers

Chat room

Educational materials include:

Fact sheet(s)

Newsletter

Conferences/workshops for:

Affected individuals and/or families

Professionals