United Leukodystrophy Foundation, Inc.

General Organizational Information

Organization Name:

Organization Acronym:

ULF

Year Established:

1982

Mission Statement:

The United Leukodystrophy Foundation is dedicated to helping children and adults who have Leukodystrophy and assisting the family members, professionals and support services that serve them. The ULF is committed to the identification, treatment and cure of all leukodystrophies through programs of education, advocacy, research and service.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Leukodystrophy

Organizational Contact Information

Title:

President

First Name:

Paula

Last Name:

Brazeal

Address:

2304 Highland Drive

Sycamore, IL, 60178

Phone:

+1 815 895 3211

Fax:

+1 815 895 2432

Toll Free Number:

+1 800 728 5483

Email:

paula@ulf.org

Website Address:

http://www.ulf.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Legislators

Media

Students

Researchers

Other

Range of services include:

Referrals to matching individuals/families

Medical referrals

Peer support

Referrals for non-medical services

Crisis intervention

Other

Telephone helpline

Loan of medical devices/equipment

Other

Educational materials include:

Fact sheet(s)

Video(s)/Movie(s)

Journal articles on condition

Pamphlet(s)

Lending library

Booklet(s)

Newsletter

Audiotape(s)

Resource guide

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals

Other

Financial assistance for:

Other