Turner Syndrome Foundation, Inc.

General Organizational Information

Organization Name:

Organization Acronym:

TSF

Year Established:

2008

Type of organization:

Condition(s)-specific organization

Mission Statement:

The goal of the Turner Syndrome Foundation (TSF) is to support research initiatives and develop programs which will increase professional awareness and enhance medical care of those affected by Turner syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a bright and healthy future for all young girls and women with Turner syndrome.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Turner syndrome

Organizational Contact Information

Title:

Director and Founding President

First Name:

Laura

Last Name:

Fasciano

Address:

PO Box 726

Holmdel, NJ, 07733

United States

See map: Google Maps

Phone:

+1 732 217 3021

Fax:

+1 800 594 3862

Toll Free Number:

+1 800 594 4585

Email:

info@tsfusa.org

Website Address:

http://www.turnersyndromefoundation.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Peer-to-peer counseling

Medical referrals

Genetic information

Referrals for non-medical services

Financial referrals

Awareness Programs

Advocacy

Training

Speakers

Telephone helpline

E-mail list

Chat room

Educational materials include:

Fact sheet(s)

Website

Newsletter

Journal articles on condition

Resource guide

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

No Revisions:

I have reviewed my listing and there are no updates to be made at this time.