Trimethylaminuria Foundation

General Organizational Information

Organization Name:

Organization Acronym:

TMAU Foundation

Year Established:

1998

Mission Statement:

Our mission is to: improve quality of life for people with trimethylaminuria, primarily through research initiatives to find a cure or improved treatment options, increase awareness, and provide peer support.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Trimethylaminuria

Organizational Contact Information

Title:

Outreach Coordinator

First Name:

Cheryl

Last Name:

Marshall

Address:

PO Box 3361 Grand Central Station

New York, 10163-3361

United States

See map: Google Maps

Phone:

+1 212 300 4168

Fax:

+1 212 300 4168

Email:

thetfnetwk@aol.com

ListServe:

theTFnetwork@listserv.galists.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Other

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Peer support

Referrals for non-medical services

Other

Peer-to-peer counseling

Awareness programs

E-mail list

Telephone helpline

Genetic information

Speakers

Pen pal program

Training

Advocacy

Chat room

Other

Educational materials include:

Fact sheet(s)

Slides

Journal articles on condition

Booklet(s)

Research updates

Newsletter

Bibliography

Resource guide

Other

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals

Other

Financial assistance for:

Other