Tourette Syndrome Association, Inc.

General Organizational Information

Organization Name:

Organization Acronym:

TSA

Year Established:

1972

Type of organization:

Condition(s)-specific organization

Mission Statement:

Founded in 1972, TSA is the only national voluntary non-profit membership organization whose mission is to identify the cause, find the cure and control the effects of Tourette Syndrome through education, research and service.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Tourette Syndrome

Organizational Contact Information

Title:

Manager, Medical & Scientific Programs

Degree:

Ph.D.

First Name:

Heather

Last Name:

Cowley

Address:

42-40 Bell Boulevard Suite 205

Bayside, NY, 11361-2820

Phone:

+1 718 224 2999

Fax:

+1 718 279 9596

Toll Free Number:

+1 800 486 8738

Email:

heather.cowley@tsa-usa.org

Website Address:

http://tsa-usa.org

Resources and Services Provided

Languages spoken:

English

Spanish

Printed materials available in:

English

Spanish

Information provided for:

Affected individuals

Families of affected individuals

Health care professionals

The public

Teachers

Media

Legislators

Range of services include:

Referrals to local chapter or group

Referrals to matching individuals/families

Crisis intervention

Medical referrals

Referrals for non-medical services

Political action

Advocacy

Speakers

Telephone helpline

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Research updates

Video(s)/Movie(s)

CD Roms

Audiotape(s)

Resource guide

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals

Number of grants awarded in last calendar year :

Amount of researching funding awarded in last year :

$1000000