Printed materials available in:
Information provided for:
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Teachers
Legislators
Media
Students
Researchers
Other
Range of services include:
Referrals to research studies
Other
E-mail list
Other
Educational materials include:
Fact sheet(s)
Video(s)/Movie(s)
Journal articles on condition
Pamphlet(s)
CD Roms
Research updates
Website
Other
Conferences/workshops for:
Researchers
Professionals
Other
Financial assistance for: