Tetrasomy/Pentasomy X Support List

General Organizational Information
Organization Name: 
Tetrasomy/Pentasomy X Support List
Year Established: 
1969
Mission Statement: 
The goals of the Tetrasomy X /Pentasomy X Support Group are to comfort, console and support the girls and their families affected by these conditions from diagnosis to daily life, to recognize the need for early intervention in speech, physical, and occupational therapy, to recognize the rich quality of life that can be achieved, to share the joy and happiness these special girls and women bring to our lives, to educate and inform the medical community and the world of these conditions, to provide a network of compassionate friends who will empathize and understand what you are experiencing, and to provide hope.
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Diseases: 
48, XXXX
Organizational Contact Information
Title: 
Parent & List Mediator
First Name: 
Cynthia
Last Name: 
Bradley
Address: 
Phone: 
+1 414 545 5825
Fax: 
+1 302 764 3924
Email: 
cyndibradley@hotmail.com
Website Address: 
http://www.tetrasomy.com
Resources and Services Provided
Information provided for: 
Other
Range of services include: 
Peer support
Other
Other
Educational materials include: 
Fact sheet(s)
Bibliography
Other
Conferences/workshops for: 
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org