Sturge-Weber Foundation

General Organizational Information

Organization Name:

Year Established:

1987

Type of organization:

Condition(s)-specific organization

Mission Statement:

To empower individuals with SWS, KT and PWS and their families, to support and refer those affected by SWS, KT and PWS, to act as a clearinghouse of information on SWS, KT and PWS, to educate the general public, the medical profession, and government agencies by disseminating information about SWS, KT and PWS, and to facilitate further research on SWS, KT and PWS.

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Organizational Contact Information

Title:

President and CEO

First Name:

Karen

Last Name:

Ball

Address:

PO Box 418

Mt. Freedom, NJ, 07970-0418

Phone:

+1 973 895 4445

Fax:

+1 973 895 4846

Toll Free Number:

+1 800 627 5482

Email:

kball@sturge-weber.org

Website Address:

http://www.sturge-weber.org

Resources and Services Provided

Range of services include:

Medical referrals

Telephone helpline

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Bibliography

Video(s)/Movie(s)

Audiotape(s)

Resource guide

Conferences/workshops for:

Researchers

Professionals