Stevens Johnson Syndrome Foundation

General Organizational Information

Organization Name:

Organization Acronym:

SJS Foundation

Branch/Affiliation:

Julie Foundation for Allegic Drug Reactions

Year Established:

1996

Brochure:

SJS_factsheet.pdf

Type of organization:

Condition(s)-specific organization

Mission Statement:

The SJS Foundation was founded to be a resource to SJS victims and their families. Our mission is provide support services, and compile and distribute valuable information about SJS to the public and medical professionals regarding treatments and therapies that prove beneficial to SJS sufferers. We work to promote public awareness about the signs of SJS so that a quick diagnosis can be made and the offending drug stopped as soon as possible.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Erythema Multiforme

Stevens Johnson Syndrome

Toxic Epidermal Necrolysis (TEN)

Organizational Contact Information

Title:

President

First Name:

Jean

Middle Initial:

Last Name:

Farrell McCawley

Address:

PO BOX 350333

Westminster, CO, 80035

Phone:

+1 303 635 1241

Fax:

+1 303 648 6686

Email:

sjsupport@aol.com

Website Address:

http://www.sjsupport.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Spanish

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Media

Legislators

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Clinical or treatment centers

Genetic testing

Referrals for non-medical services

Non-medical services

Legal advice

Political action

Advocacy

Services for the visually impaired

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Website

Newsletter

Journal articles on condition

Conferences/workshops for:

Affected individuals and/or families

Researchers

No Revisions:

I have reviewed my listing and there are no updates to be made at this time.