Spinal Muscular Atrophy Foundation

General Organizational Information

Organization Name:

Organization Acronym:

SMA Foundation

Year Established:

2003

Type of organization:

Condition(s)-specific organization

Mission Statement:

The mission of the Spinal Muscular Atrophy Foundation is to accelerate the development of a treatment for SMA, the number one genetic killer of infants and toddlers.

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Spinal Muscular Atrophy (SMA)

SMA Type II

Organizational Contact Information

Title:

Executive Director

First Name:

Cynthia

Last Name:

Joyce

Address:

888 Seventh Ave. Suite 400

New York, NY, 10019

United States

See map: Google Maps

Phone:

+1 6462537100

Fax:

+1 2122473079

Email:

info@smafoundation.org

Website Address:

http://www.smafoundation.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Legislators

Researchers

Range of services include:

Referrals to research studies

Awareness programs

Political action

E-mail list

Clinical or treatment centers

Advocacy

Educational materials include:

Fact sheet(s)

Slides

Research updates

No Revisions:

I have reviewed my listing and there are no updates to be made at this time.