Spina Bifida Resource

General Organizational Information

Organization Name:

Year Established:

1978

Type of organization:

Condition(s)-specific organization

Mission Statement:

Spina Bifida Resource's mission is to promote the prevention of spina bifida and its secondary conditions and to enhance the health and well-being of those affected.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Spina bifida

Hydrocephalus

Arnold Chiari Malformation

Organizational Contact Information

Prefix:

Title:

Executive Director

First Name:

Patricia

Last Name:

Fulvio

Address:

209 East State Street

Quarryville, PA, 17566-1242

United States

See map: Google Maps

Phone:

+1 717 786 9280

Fax:

+1 717 786 6092

Toll Free Number:

+1 888 770 7272

Email:

SBAofPA@aol.com

Website Address:

http://www.SpinaBifidaResource.weebly.com

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Spanish

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Parents

Fathers

Mothers

Siblings

Grandparents

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Peer-to-peer counseling

Crisis intervention

Help with adoption or placement

Medical referrals

Genetic information

Loan of medical devices/equipment

Rehabilitation resource referrals

Referrals for non-medical services

Advocacy

Speakers

Telephone helpline

E-mail list

Chat room

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Newsletter

Video(s)/Movie(s)

CD Roms

Audiotape(s)

Lending library

Resource guide

Student materials

Conferences/workshops for:

Affected individuals and/or families

Professionals

Financial assistance for:

Medical care

Transportation

Assistive devices

Scholarships

No Revisions:

I have reviewed my listing and there are no updates to be made at this time.