Spina Bifida Association

General Organizational Information

Organization Name:

Year Established:

1973

Brochure thumbnail:

Brochure:

spina_broc.pdf

Type of organization:

Condition(s)-specific organization

Mission Statement:

The mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Spina bifida

Organizational Contact Information

First Name:

Cindy

Last Name:

Brownstein

Address:

4590 Mac Arthur Boulevard, NW Suite 250

Washington, DC, 20007

Phone:

+1 202 944 3285 13

Fax:

+1 202 944 3295

Toll Free Number:

+1 800 621 3141

Email:

cbrownstein@sbaa.org

Website Address:

http://www.spinabifidaassociation.org

Resources and Services Provided

Languages spoken:

English

Spanish

Printed materials available in:

English

Spanish

Information provided for:

Affected individuals

Care providers

Health care professionals

The public

Range of services include:

Referrals to local chapter or group

Clinical or treatment centers

Referrals for non-medical services

Non-medical services

Advocacy

Speakers

Telephone helpline

E-mail list

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Magazine

Website

Newsletter

Audiotape(s)

Resource guide

Conferences/workshops for:

Affected individuals and/or families

Professionals

Financial assistance for:

Scholarships