Spastic Paraplegia Foundation

General Organizational Information

Organization Name:

Organization Acronym:

SPF

Year Established:

2009

Type of organization:

National Condition(s)-specific organization

Mission Statement:

We are committed to discovering the cures for HSP and PLS by promoting research, providing accurate information about these disorders, and creating opportunities for mutual support and sharing.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Hereditary spastic paraplegia

Organizational Contact Information

Title:

Director

First Name:

Mark

Last Name:

Weber

Address:

4 Sherwood Hill Rd.

Sherman, CT, 06784

Phone:

+1 860 210 8101

Email:

info@sp-foundation.org

Website Address:

http://www.sp-foundation.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

Spanish

English

Information provided for:

Affected individuals

Families of affected individuals

The public

Other

Range of services include:

Referrals to research studies

Peer support

Non-medical services

Other

Awareness programs

E-mail list

Genetic information

Chat room

Other

Educational materials include:

Fact sheet(s)

Journal articles on condition

Pamphlet(s)

Research updates

Newsletter

Resource guide

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Other

Financial assistance for:

Other