Sjögren's Syndrome Foundation, Inc.

General Organizational Information

Organization Name:

Organization Acronym:

SSF

Year Established:

1983

Brochure:

ssf_whatis_ss_brochure.pdf

Type of organization:

Condition(s)-specific organization

Mission Statement:

The SSF provides patients practical information and coping strategies that minimize the effects of Sjögren's syndrome. In addition, the Foundation is the clearinghouse for medical information and is the recognized national advocate for Sjögren's syndrome.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Sjogren Syndrome

Organizational Contact Information

Title:

Chief Executive Officer

First Name:

Steven

Last Name:

Taylor

Address:

6707 Democracy Boulevard Suite 325

Bethesda, MD, 20817

United States

See map: Google Maps

Phone:

+1 301 718 0300

Fax:

+1 301 530 4415

Toll Free Number:

+1 800 475 6473

Email:

staylor@sjogrens.org

Website Address:

http://www.sjogrens.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Peer-to-peer counseling

Referrals for non-medical services

Awareness Programs

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Research updates

Video(s)/Movie(s)

Audiotape(s)

Resource guide

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals

Research Management:

Linking researchers and families

Participant recruitment

Awarding research grants

Providing information about clinical trials

Major research interests of the organization:

Sjogren's syndrome

Current projects:

Funded projects may be viewed at www.sjogrens.org/research

Number of grants awarded in last calendar year :

Amount of researching funding awarded in last year :

$287000

Amount of funding allocated to drug development: