Sickle Cell Disease Association, Oklahoma

General Organizational Information

Organization Name:

Organization Acronym:

SCDAAO

Year Established:

1971

Type of organization:

State Condition(s)-specific organization

Mission Statement:

Our mission is to promote awareness of the genetics and impact of sickle cell disease and related conditions and provide leadership to promote the continuous improvement of the systems necessary to provide community, health and support services for individuals with sickle cell disease.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Serves the following conditions

Organizational Contact Information

Title:

Executive Director

Degree:

LPN, Associate Sociology

First Name:

Cheryl

Middle Initial:

Last Name:

Freeman

Address:

PO Box 1314

Tulsa, OK, 74106

Phone:

+1 918 428 1974

Fax:

+1 918 428 1982

Toll Free Number:

+1 800 259 9989

Email:

sicklecok@tulsacoxmail.com

Website Address:

http://www.sicklecell-ok.org/

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

Spanish

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Legislators

Media

Students

Researchers

Other

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Professional counseling

Medical referrals

Rehabilitation resource referrals

Peer support

Referrals for non-medical services

Financial referrals

Non-medical services

Crisis intervention

Other

Peer-to-peer counseling

Genetic testing

Awareness programs

Political action

Summer camp

Telephone helpline

Genetic information

Speakers

Training

Advocacy

Other

Educational materials include:

Fact sheet(s)

Video(s)/Movie(s)

Pamphlet(s)

Booklet(s)

Newsletter

Other

Conferences/workshops for:

Affected individuals and/or families

Public

Professionals

Other

Financial assistance for:

Transportation

Other