Sickle Cell Disease Association of America, Inc.

General Organizational Information

Organization Name:

Year Established:

1972

Type of organization:

Condition(s)-specific organization

Mission Statement:

Our mission is to help improve the quality of life for persons/families affected by the sickle cell syndrome and related genetic disorders.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Organizational Contact Information

Title:

Executive Director

First Name:

Elizabeth

Last Name:

Simpson

Address:

231 East Baltimore Street Suite 800

Baltimore, MD, 21202

Phone:

+1 410 528 1555

Fax:

+1 410 528 1495

Toll Free Number:

+1 800 421 8453

Email:

scdaa@sicklecelldisease.org

Website Address:

http://www.sicklecelldisease.org/

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Spanish

Range of services include:

Referrals to local chapter or group

Professional counseling

Grief counseling

Medical referrals

Genetic counseling

Genetic information

Rehabilitation resource referrals

Referrals for non-medical services

Non-medical services

Financial referrals

Political action

Advocacy

Training

Speakers

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Magazine

Newsletter

Slides

Video(s)/Movie(s)

CD Roms

Lending library

Resource guide

Student materials

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

Financial assistance for:

Medical care

Transportation

Scholarships