Short Rib Polydactyly Syndrome Support Network

General Organizational Information
Organization Name: 
Short Rib Polydactyly Syndrome Support Network
Year Established: 
2009
Mission Statement: 
Our mission is to build a community of families who can share experiences and information, and provide mutual support on issues related to SRPS, and to provide information that helps families better understand SRPS and keep them updated on the latest medical research.
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Organizational Contact Information
First Name: 
Kim
Last Name: 
Gucciardi
Address: 
332 Pine Shore Drive
Hinesburg, VT, 5461
Phone: 
+1 802 482 7271
Email: 
kim_gucciardi@idx.com
Website Address: 
http://www.srps.net
Resources and Services Provided
Information provided for: 
Other
Range of services include: 
Peer support
Other
Peer-to-peer counseling
Other
Educational materials include: 
Membership directory
Newsletter
Resource guide
Other
Conferences/workshops for: 
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org