Printed materials available in:
Information provided for:
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Teachers
Media
Students
Range of services include:
Referrals to matching individuals/families
Professional counseling
Peer support
Grief counseling
Peer-to-peer counseling
Awareness programs
E-mail list
Telephone helpline
Genetic information
Genetic counseling
Educational materials include:
Booklet(s)
Newsletter
Resource guide
Website
Student materials
Conferences/workshops for:
Affected individuals and/or families
Public
Professionals